11-year-old Jaishree has been suffering from a severe brain | Milaap
11-year-old Jaishree has been suffering from a severe brain condition
  • Thathvamasi

    Created by

    Thathvamasi
  • K

    This fundraiser will benefit

    K.Shalini

    from Namakkal, Tamil Nadu

This is regarding Baby Jaishree, aged about 11 years, daughter of Kumareshan, and is a known case of Pantothenate Kinase deficiency dystonia which is a neurological disease.  She is suffering from this disorder since 5 years of age.

She underwent Deep Brain stimulation in NIMHANS, in the year 2012. After 3 months she developed infection in the implant site for which she was advised removal of implants. Till 3 years after the removal child was doing better on medical management of dystonia. Since one year the dystonia has recurred and has worsened from past one month to an extent that she is unable to even swallow her own salivatory secretions and is having repeated respiratory tract infection.

The only treatment recommended for her now is a surgery that requires brain implants. The total cost of the surgery and treatment is around 17 lakh Rs. Unfortunately, Kumareshan does not have the funds to afford the treatment and is scared he will lose his daughter.

Your contribution can save Jaishree and give her the life she deserves.

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