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HELP LITTLE VIHAAN TO FIGHT THALASSEMIA (A CRITICAL BLOOD DISORDER)

I, Vinit and my wife Bharti were blessed with our first child Vihaan in March’ 2012. We were very excited and feeling blissful to have little Vihaan in our life but unfortunately after 3 months he was diagnosed with a very critical disease named BETA THALASSEMIA - MAJOR. This unfortunate news traumatized our entire family and it took Vihaan to many hospitals across India to find the right treatment.

BETA THALASSEMIA - MAJOR is a critical blood disorder that causes a striking deficiency in production of hemoglobin. At birth, Vihaan seemed entirely normal as the fetal hemoglobin was predominant but this fatal disease begins to develop within the first few months after his birth and becomes progressively more and more severe.

After meeting various Doctors - Paediatric Haematology Specialists and series of medical examinations, we learnt that the only curative treatment of BETA THALASSEMIA - MAJOR is BONE MARROW TRANSPLANT which requires an HLA (human leukocyte antigen) - Matched Donor but he will have to be on regular blood transfusion and Iron chelation therapy until a matched donor is found. With his growing age, the frequency of blood transfusion is increasing and so as the Iron chelation dose which is very painful for a small kid like Vihaan.

Over last 5 years, Vihaan is suffering with this critical disease and is on regular blood transfusion and Iron chelation (a therapy to remove iron overload from human organs i.e, lungs, heart, liver etc caused due to blood transfusion) at Narayana Hrudayalaya (Mazumdar Shaw Cancer Centre, Bommasandra, Hosur Road, Bangalore).

With the help of Dr. Shobha B, Dr. Sunil Bhat (at Narayana Hrudayalaya - Mazumdar Shaw Cancer Centre) and DATRI (A Bone Marrow Registry), we have found an unrelated matched Bone Marrow donor for Vihaan in June’17 which gave us a ray of hope for his life. The bone marrow transplant is planned between July’17 to Sep’17 months. To proceed with the treatment, it requires a huge amount of money.

I am working as an accountant with a private organization and my wife is a home maker. The estimated cost of the treatment is Rs. 52 Lacs / USD 80K (Hospital Estimation Enclosed) which we are finding difficulty and impossible to personally arrange this huge sum of amount for my son’s treatment.

We are requesting for your support to help Vihaan fight back this sinful disease and recover completely. We will be grateful to all the donors for saving my son’s life.
Bone Marrow Cost Estimate_NH Hospital
Bone Marrow Cost Estimate_NH Hospital
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6th June 2018
Dear Supporters,

Thank you for your tremendous love and support. This couldn't have been possible without you.

Vihaan is currently back home and is doing better. He was hospitalised two weeks ago because he showed some irregularities but was treated and is now much better.

He is now on medication and medical support at home. We are supposed to take him for a checkup once every week. He also undergoes blood tests from time to time to check his progress. The doctors are observing him closely and we are all hopeful about his recovery. Please keep praying for him. Thank you once again!
13th March 2018
Dear Well Wishers,

Thank you so much for all your prayers and blessings for Vihaan’s recovery. It’s been some time I have kept you all informed about Vihaan’s treatment.

Vihaan is doing fine and cooperating well with the treatment procedures. Preparatory chemotherapy and medication to reduce the Iron overload was given to him until Jan’18 and he was then admitted to hospital for transplant.

During the first week of hospitalization, he was on Immunosuppression and multiple chemotherapy drugs and he was then given donor’s bone marrow cells on 9th / 10th Feb-18 (which was cryo-preserved with the “Mazumdar Shaw Cancer Center” at Narayana Hrudayalaya).

Vihaan has been kept isolated in Transplant Unit to avoid any kind of infections as his immunity is extremely low due to Immunosuppression drugs.

Request you all to keep praying for his faster recovery and wish him a long healthy life.

Thank you once again and will keep you all informed on the further progress.
27th August 2017
Dear Well Wishers,

Please accept my sincere gratitude for your overwhelming response and support in raising the gigantic fund for Vihaan’s treatment. I am very grateful to each one of you for your blessing to Vihaan for his recovery and contributions.

I would like to apprise you all with the progress on Vihaan’s treatment.
DATRI (Bone Marrow Registry) helped us to coordinate for medical pre-screening of donor and bone marrow harvest is completed; it is cryo-preserved now with the “Mazumdar Shaw Cancer Center” at Narayana Hrudayalaya to be used at the later date. Medication to reduce the Iron overload (caused due to several blood transfusions over past 5 years) is intensified along with some preparatory medications; Vihaan is responding well to the medications. Vihaan’s bone marrow is harvested and stored as well during the first week of Aug 17 which is backed-up as life savior.

I will be stopping this fund raising campaign but I will keep you all updated on Vihaan’s condition and progress on his treatment. Please keep him in all your prayers and wish him a long healthy life. A heartfelt “Thank you” to each one of you again !!!
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Rs.7,100
raised of Rs.50,000 goal

4 Supporters

Beneficiary: VIHAAN PURI info_outline

Supporters (4)

MI
Milaap Impact Partner donated US $1.59
12 months ago

Matching payment towards Nivedita’s contribution

N
Nivedita donated Rs.500
12 months ago

Get Well Soon...

A
Anonymous donated Rs.4,000
about 1 year ago
A
Anonymous donated Rs.2,500
about 1 year ago