I am fundraising to gVHD AND INFECTION TREATMENT OF MY SON RHYTHM | Milaap
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I am fundraising to gVHD AND INFECTION TREATMENT OF MY SON RHYTHM

Why am I fundraising?

In 2013 My son was diagnosed with thalaseemia major for which he has gone through Bone Marrow Transplantation (BMT) in 2014, at Apollo speciality hospital, chennai.In Jan'15 he had chronic GVHD (Graft Versus Host Disease) as Auto immune hemolytic anemia, for which he was treated with many costly antibiotics for three months.After that from May'15 he got severe fungal infection in sinus and blood disorder for which he is admitted at Apollo Speciality Hospital, Chennai and getting anti fungal medicines which are very costly. Doctor has provided cost estimate of Rs 10/- lacs for treatment of infection and blood disorder. I have already spent huge amount (as mentioned below) on BMT and now not in a position to arrange such a huge cost of Rs 10/- lacs for treatment of infections and blood disorder. Therefore, request your goodself to kindly provide financial assistance of Rs 10/- lacs so that post BMT GVHD and infections can be treated and his life can be saved.

 Summary of cost incurred till date on BMT and infections-

(1)Bmt cost 55lakhs.

(2)Gvhd cost 15lakhs
(3)Fungal infection cost 20lakhs.
(4) Total- 90 Lacs

 

What do I plan to do with the funds?

 Treatment of post BMT- GVHD and acute infections

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26th March 2016
Dear Supporters,
I hope you all are fine. I like to thank you all once again for your support and blessings for my son. He is fine now but still on medicines. Thanks to Milaap from the bottom of my heart. Thank you all!
Warmly,
Arvind and Priyanka
Dear Supporters,
I hope you all are fine. I like to thank you all once again for your support and blessings for my son. He is fine now but still on medicines. Thanks to Milaap from the bottom of my heart. Thank you all!
Warmly,
Arvind and Priyanka
9th November 2015
Hello all supporters

Thank you so much for your support and blessings for my son's treatment and health.

Rhythm is recovering from his problems by the grace of God and supporters like you. 

Thank you very much for your blessings. I can't forget your support and prayers. Thank you is very small word to say. I would like to request you to please continue the support and blessings for my son's health.

Thank you once again to all supporters and Milaap Team.

Arvind
Rhythm father.
Hello all supporters

Thank you so much for your support and blessings for my son's treatment and health.

Rhythm is recovering from his problems by the grace of God and supporters like you. 

Thank you very much for your blessings. I can't forget your support and prayers. Thank you is very small word to say. I would like to request you to please continue the support and blessings for my son's health.

Thank you once again to all supporters and Milaap Team.

Arvind
Rhythm father.
22nd August 2015
My son Rhythm Agarwal  3 years old had thalassemia major for which he had undergone unrelated stem cell transplant with fully match donor in June 2015. He was on steroids due to gut GVHD.In this January his steroids were slightly reduced due that his counts started falling very drastically. After doing many test like Hb electrophoresis,direct combs test,Ldh,donor chimerism,reticulocyte count it was diagnosed that he developed chronic Gvhd as autoimmune hemolytic anemia with 100%donor. For which he was treated with Ivig and heavy doses of steroids but there was no improvement in his counts. As because of low platlets it started bleeding. Doctor has given 3doses of rituximab injection and reduce steroids and it works and his counts started improving. As rituximab is very heavy dose of immunosuppressant  he got infection like heavy viral load in the body and again his  counts were falling and he became very sick. As there was no way doctors had given him Ganciclovir injection to control cmv viral load in the body and again by the grace of God it worked and his condition has improved but counts were still not coming up because his autoimmune had not settle down. Then doctor given him 3doses of bortinib injection and as our always hope his counts were improved.


But due to so many immunosuppressant medicines as our bad luck he developed fungal infection in his sinus in this May for which he was admitted in hospital for 25 days , followed by endoscopy 3 times to remove his fungus. He is only 3 years old doctors can't remove his fungus deeply and given high antifungal medicines like lambin and Cancidas. His fungal infection was in control.


In this June he got very rare type of autoimmune as subcutaneous fat necrosis in his skin , which is very painful. Doctor has tried a lot to settle his disease but nothing worked.Now the challenge is to get the autoimmune into control.


So,now again we have to go through all the heavy medicine to control cgvhd as autoimmune hemolytic anemia as well as thrombocytopenia and subcutaneous fat necrosis.


From this January to June we have spended lot of money  than our capacity for his one by one problems because we can't let him go because of financial problems. We want to cure him till the last hope and for which I have started raising funds. We have hope that all supporters help will give my child a new life.


So,I request all the supporters to come forward and help us meet the treatment cost.


My son Rhythm Agarwal  3 years old had thalassemia major for which he had undergone unrelated stem cell transplant with fully match donor in June 2015. He was on steroids due to gut GVHD.In this January his steroids were slightly reduced due that his counts started falling very drastically. After doing many test like Hb electrophoresis,direct combs test,Ldh,donor chimerism,reticulocyte count it was diagnosed that he developed chronic Gvhd as autoimmune hemolytic anemia with 100%donor. For which he was treated with Ivig and heavy doses of steroids but there was no improvement in his counts. As because of low platlets it started bleeding. Doctor has given 3doses of rituximab injection and reduce steroids and it works and his counts started improving. As rituximab is very heavy dose of immunosuppressant  he got infection like heavy viral load in the body and again his  counts were falling and he became very sick. As there was no way doctors had given him Ganciclovir injection to control cmv viral load in the body and again by the grace of God it worked and his condition has improved but counts were still not coming up because his autoimmune had not settle down. Then doctor given him 3doses of bortinib injection and as our always hope his counts were improved.


But due to so many immunosuppressant medicines as our bad luck he developed fungal infection in his sinus in this May for which he was admitted in hospital for 25 days , followed by endoscopy 3 times to remove his fungus. He is only 3 years old doctors can't remove his fungus deeply and given high antifungal medicines like lambin and Cancidas. His fungal infection was in control.


In this June he got very rare type of autoimmune as subcutaneous fat necrosis in his skin , which is very painful. Doctor has tried a lot to settle his disease but nothing worked.Now the challenge is to get the autoimmune into control.


So,now again we have to go through all the heavy medicine to control cgvhd as autoimmune hemolytic anemia as well as thrombocytopenia and subcutaneous fat necrosis.


From this January to June we have spended lot of money  than our capacity for his one by one problems because we can't let him go because of financial problems. We want to cure him till the last hope and for which I have started raising funds. We have hope that all supporters help will give my child a new life.


So,I request all the supporters to come forward and help us meet the treatment cost.


Rs.1,668,607
raised of Rs.2,000,000 goal

898 Supporters

Supporters (898)

pr
priya donated US $25
almost 3 years ago

Get well soon

K
Kajal donated Rs.2,500
almost 3 years ago
AS
Aarush donated US $100
almost 3 years ago

God Bless You..

R
R donated Rs.500
almost 3 years ago
A
Anonymous donated Rs.500
almost 3 years ago

May the Lord Jesus, the divine healer touch you and heal you and bless you with a wonderful life ahead. In Jesus name.Amen

A
Anonymous donated Rs.2,500
almost 3 years ago

Master Rhythm Agarwal be strong and you will get well soon & to your parents have hope never give up