In last three years he has been admitted 5 times in CMC vellore, and every time has had 2 blood transfusion at least. He is living with a very critical hemoglobin level (max 8).
Only cure to this disease PNH is bone marrow transplantation which doctors have been postponing because it has a certain amount of risk but 1 month ago his hemoglobin level went down to 3 and he was admitted in CMC, Vellore, Doctors figured out that he was diagnosed with an other disease Thrombosis ( a blood clot inside a blood vessel) near spleen. He was admitted for 12 days this time and hospitalization cost INR 2 lakhs. Since now he has thrombosis also, Doctors suggest that now he should go for bone marrow transplant cause it is the only option left. After he got discharged , he has been taking high dose of steroids and other very costly medicines, very costly checkups.
As he does not have HLA matched sibling donor, best option for him would be to undergo peripheral blood stem transplant with matched unrelated donor(MUD). The estimated cost of MUD in CMC Vellore is approximately INR 35,00,000 .
His family can not afford this huge amount as he belongs to agrarian family. Please help us to save his life. Please donate some money so that he can live his life.