She is just 4 months old now and is getting treated at Rainbow Hospitals - Hyderabad currently. However, for further treatment she was asked to be moved to Chennai as this a very rare condition (seen only in 3 out of 100 children born).
Parents have spent close to 10 lakhs till now. However, an estimate of 15 lakhs was given for further treatment. Since the parents couldn't afford any more money, they turned to fundraising. This was covered by a local news channel as well.
Please watch the below video to check further details: https://youtu.be/WDnlZPcfZFU
To know more about the disease, check this link:
Please help this child in getting a new life. Please donate generously.