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This baby girl needs a liver transplant to survive

Kayra’s birth was one of the happiest things for me and my wife Reshma. Unlike our relatives, we always wanted to have a baby girl. The face of newborn Kayra had lightened up our world.

I work in a sugar industry in Lucknow and I earned enough for our small family - my wife Reshma, and two children Aditya and Kayra. Though I work in a sugar factory, I only have seasonal employment of about 6-8 months in the sugarcane season. When I am unemployed in the summer, it becomes a little difficult to make ends meet. I have always tried to save as much as I can in the productive months.

Problems started soon after Kayra’s birth

Even before Reshma was released from the hospital after delivery, Kayra was diagnosed with jaundice. She was kept under 3-days observation. Then, we took her home and she seemed healthy. But Kayra began suffering soon after. In a month’s time Kayra’s body was not only showing strong signs of jaundice, but also her fevers kept recurring.

We took her to PGI, Chandigarh, where she was diagnosed with biliary atresia, a liver condition where the liver develops a severe infection. At the age of just 80 days, my little baby needed a liver surgery. After the surgery, the doctors said that Kayra would live a healthy life just like any other baby her age. But since last December, she has been suffering again.

Since birth, Kayra has suffered from fever, cough and cold and severe jaundice. Her bilirubin levels keep on fluctuating and right now it is 30 (normal range is 1-20µmol/L) and this scares us. She is too small to express her pain. She keeps crying all day; has bruises from injections all over her body. She is irritable and sick.

There are people who can help us, but they don't want to

My income of 6-8 months is not sufficient to run my family for the remaining months. Since Kayra’s birth, I have been spending a lot of money. I have spent all my savings and now I am left with no money. The saddest part is that our families and relatives will not come forward to help us. Their reason to not help, has left us in shock. Kayra is a girl and they are not ready to help a 'girl' child. Had it been Aditya, my son, they would have readily helped.

Kayra knows the hospital much better than our own home. It breaks our heart to see our little baby go through so much pain. Since last December, her fever has been recurring again and the liver infection has aggravated. The doctors say that if Kayra doesn’t undergo liver transplant as soon as possible, she is most likely to suffer liver failure and we won’t be able to save her.

Everyday we look for ways to gather funds for her treatment. I don't have medical insurance from work which would have been of some help. Reshma and I are absolutely lost and we don't know how to save our one-year-old baby. We have been fighting for her from when she was born because our families don't favour a girl. We want her to grow up and fight for herself. We can’t afford to lose her to a disease.

The disease is taking control over Kayra

Even though she can't speak, we can see the pain and fear in her eyes. She holds on to us with all her might. She refuses to consume even liquid diets and that has made her very weak. Doctors have also said that if the transplant doesn’t take place quickly, she will stop consuming any food and that would be deadly. It will be very difficult to save her.

After Kayra was born, Reshma and I have been preparing ourselves to go up against all odds and give our children the best of everything. Aditya and Kayra are our hopes and we dream of their success and happiness. Kayra has a long way to go and I simply can’t let a disease take her life. She is too small to suffer this much pain.

How can you help?

We have gone to several hospitals to see what is the best we can do for her. Doctors have carried out tests and confirmed that both I and Reshma are suitable donors for Kayra. Although liver transplant is the only way to save our baby girl, the huge sum of Rs 15 lakhs required to carry out the process is impossible to arrange. I am already in neck-deep debt and now there is no one who would help us. Only your support can help us save our baby girl.
Estimation letter
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11th May 2018
Dear Supporters,

We have some unfortunate news to share with you.

Baby Kayra passed away on 10th May 2018 around 4:55 PM. She endured a lot of pain in her last days.

She successfully underwent the liver transplant. She faced a lot of post-surgery complications. Her platelet count went really low and there was internal bleeding in her brain. Baby was too weak to recover from the pain and took her last breath yesterday.

We all are devastated after losing our beloved daughter.
We are grateful to all of you for your generous contributions. Withdrawn funds will be utilized to settle down the medical expenses incurred on her treatment.

May her soul rest in peace.
2nd April 2018
Dear Supporters,

Thank you for the wonderful support that you have shown towards Baby Kayra. She is doing better now compared to earlier and has successfully undergone the liver transplant on Friday (30th March). Her mother donated a part of her liver to Kayra and she is also doing better now.

Kayra has been advised to stay in the ICU as the first few days after the procedure are a little critical and her health and progress will be closely monitored.

Thank you for the wonderful support once again. Will keep you posted. 

Dr Smita Malhotra
19th March 2018
Dear supporters,
We thank you for your support.

Here's an update on Baby Kyra's health -

She has infection in her urine and blood along with an abscess in the diseased liver.She needs treatment for the same for at least 14 days and has to clear the infection before we can proceed with the transplant. She is also being nutritionally built up by giving her feeds through a food pipe as her appetite is not good because of her illness.

We still need your support and request you all to please pray for her.

Thank you
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raised of Rs.10,000 goal

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Beneficiary: Kayra Handa info_outline

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letshelp donated Rs.500
5 months ago