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Help My Child to fight very rare disease Short Bowel Syndrome

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Updates (5)

Hello,

I am Rajesh Kumar from Pune, India. My child is suffering from a very rare disease called Short Bowel Syndrome(SBS) because of doctor's negligence and delayed surgery of blockage in small intestine. The problem which would have been treated easily is now life threatening and too expensive to afford. He is not able to digest food and get proper nutrition for his growth. Small bowel transplant is essential for his survival.

He is currently in PICU from 2.5 months on TPN( total parental nutrition and approximately 4 lacs a month hospital expense) and would be needing small intestine transplant in few months of time that will cost additional 25-30 lacs. His treatment is continued in Ruby Hall Clinic Pune.

Appreciate any financial assistance to continue my child treatment.

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17th June 2017

Dear Supporters,

We are donating Rs. 18000 for Old age people for food, clothing medical facilities, nursing, mental & emotional support to Kinara Vruddha & Matimand Seva Trust. You can find more details of the Saif organisation providing shelter, food, clothing, medicines etc.
http://www.kinara.org

Thank you.

14th November 2016

Dear Supporter,

It really gives me great satisfaction to post this update.

Below are the details of the campaigns towards which we have donated a part of money, in a bid to help for them for their respective treatments, after the Milaap team completed all their required formalities.

1) https://milaap.org/fundraisers/SaveNarayan : RS 150000
2) https://milaap.org/fundraisers/ShekarR -Rs 75000
3) https://milaap.org/fundraisers/HELP-JANARTHANAN =Rs 90000

I had discussions with the Milaap team to keep this memorial fund campaign so that other people in need, can benefit from it.

Thank you once again for your wonderful support and for contributing towards this fund .

We will keep you posted on this.

Thanks & Regards
Rajesh Kumar

30th September 2016

Dear all,

This is Athira from Milaap. This is a follow up note to Rajesh's email you have just received. We all came together to help baby of Rajesh recover but unfortunately he is not with us now. Your support has been overwhelming and gave the family strength and hope. Thank you all for the support and prayers.

As Rajesh mentioned, we can utilize the funds raised to help a child in similar situation. We can also go ahead with Rajesh's second option of creating a welfare fund in memory of the child which will help more than one child in a similar situation.

Give us a couple of days to structure this out and inform you. We will share these details over an email to each of you. However, if you wish to receive your donation back, you can reply to this email and we will proceed with the same.

Thank you once again for your support.

-Athira