Support 10 Month Old Kurmanath Fight With A Rare Genetic Disorder | Milaap
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Support 10 Month Old Kurmanath Fight With A Rare Genetic Disorder

My name is Santosh and I am here to fundraise for my son, Kurmanath S. 

I work as a software developer, and I have two children, Tejopranathi and Kurmanath. Kurmanath is diagnosed with diabetes on the 2nd day from his birth and rare Genetic disorder IL2RA . He is just going to be 11 months old and right now weighs only 5.5 kgs. Later, we came to know he was diagnosed with a rare genetic mutation and requires to undergo Bone Marrow Transplant. This case of genetic mutation has only been registered with 4 cases, out of which only 2 babies have survived till this day. Kuramanath is one of them, but he needs to undergo a Bone Marrow Transplant to fully recover from this rare genetic disorder. We have to take an insulin injection daily for his treatment, and have to check his readings every 8 hours manually. In the 11 months of duration he has been hospitalized 14 times.

My 5 year old daughter, Tejopranathi looks after Kuramanath like her own kid, she never leaves his side. And always want to spend time with him and play with him. The expenses till today has been around 27 Lakhs which I allocated through loans, savings, insurance, etc. But he needs atleast another 25 Lakhs for his Bone Marrow Transplant. 

Please come forward to help me save my son. Any contribution will immensely help my family. I need your support to bring them home. Do contribute and share this campaign link with your friends and family.

Letter
Letter
Ask for an update
2nd January 2020
Hi All,
Thanks for all  your helping hearts came to see smiles on Kurmanath. We could not find full HLA Match to perform Bone Marrow Transplant. Please pray God that we could find full match. Once again i thank and pkeas keep Kurmanath in your daily prayers.
Thanks,
Santosh.
  
Hi All,
Thanks for all  your helping hearts came to see smiles on Kurmanath. We could not find full HLA Match to perform Bone Marrow Transplant. Please pray God that we could find full match. Once again i thank and pkeas keep Kurmanath in your daily prayers.
Thanks,
Santosh.
  
6th May 2019
Dear Supporters,

Thank you all for the love and support. Your response has been truly amazing and inspiring.

We have not yet found a matching donor for Kurmanath. I, myself, was just a half match for the transplant and so were my family members who tried the test. I do not want to risk with that and I am in search of donors and have enlisted Kurmanath in various sources. Hopefully, we find a matching donor soon. I am also extending the date of the campaign since the expenses are increasing and I need to raise more funds for the transplant.

Thank you all for standing with me in these difficult times. Please keep supporting us and sharing the campaign with your friends and family.

Thanks
Dear Supporters,

Thank you all for the love and support. Your response has been truly amazing and inspiring.

We have not yet found a matching donor for Kurmanath. I, myself, was just a half match for the transplant and so were my family members who tried the test. I do not want to risk with that and I am in search of donors and have enlisted Kurmanath in various sources. Hopefully, we find a matching donor soon. I am also extending the date of the campaign since the expenses are increasing and I need to raise more funds for the transplant.

Thank you all for standing with me in these difficult times. Please keep supporting us and sharing the campaign with your friends and family.

Thanks
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Rs.24,219 raised

Goal: Rs.500,000

Beneficiary: Kurmanath info_outline

Supporters (23)

MI
Milaap Impact Partner donated $7.14

Matching payment towards Anonymous’ contribution

A
Anonymous donated Rs.2,500
A
Anonymous donated Rs.500
A
Anonymous donated Rs.500

Fight... never give up

SS
Sony donated $25
A
Anonymous donated Rs.250