I'm creating this group to bring attention to the lack of funding of people affected with genetic conditions in India. In India, individuals with genetic conditions are unable to attain insurance and thus, are made to pay for medical equipment, nurses, etc. themselves. As an American, who has insurance, I cannot imagine what this family is going through.
I have a deep passion for India and their culture and therefore have quite a few people with SMA (my disease) and family members of those affected with SMA on my Facebook. Through different connections, I asked an Indian friend who has a son with SMA, if she knew anyone that I could help, as this is a serious condition that shouldn't be. She directed me toward Priti Chavan. Priti had two beautiful twins, both affected with SMA type I (the most fatal). Her son, sadly, passed away due to loss of lung function. Her daughter, Kimaya, is still alive and this page is to fund some of her needs. Recently. Kimaya's lung collapsed and is now in need of a tracheotomy.
The Indian rupee conversion is 67 rupees for one American dollar. Also, prices are much cheaper in India. An American dollar goes a long way to help an Indian family in need.
I want you all to rest assured that your money will be safe, as I extremely cautious. For safety reasons, I will buy her equipment, online, through Indian health-store websites and will make sure everything you donate goes directly to Kimaya. If you are willing to help by just donating a dollar, it will mean the world to Kimaya's mom, Priti.
Thank you,
Rachel