16 Month Baby Ayansh Madan's Life Has A Price Tag Of 16 Crore. SMA Kid | Milaap
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16 Month Baby Ayansh Madan's Life Has A Price Tag Of 16 Crore. SMA Kid
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Need Rs.30,000
  • Anonymous

    Created by

    Akansha Jain
  • AM

    This fundraiser will benefit

    Ayansh Madan

    from Gurugram, Haryana

80G tax benefits for INR donations

Ayansh Madan is a 16-Months old boy from Gurgaon, Haryana. He is born to his parents after waiting 12 long years. Ayansh was diagnosed with SMA when his growth milestones were not seen.

Spinal Muscular Atrophy (SMA) affects 1 in 10,000 infants and results in progressive loss of mobility, respiratory complications, muscle weakness and atrophy, as well as challenges swallowing and eating. SMA is also the leading genetic cause of infant death worldwide.

Ayansh Madan has the most lethal form of SMA disease type, which claims the lives of most patients by age 2. If not treated, the life span of infants with SMA Type varies up to 1 or 2 years depending on the progression.

Treatment Options:
Zolgensma Gene Therapy is a potential cure for SMA for children below two years of age and it has to be imported from the USA. Ayansh Madan needs Zolgensma gene therapy as soon as possible to save his life.

Zolgensma comes at an extortionate price of INR 16 crores (USD $2.125 million) approximately excluding taxes and duties. The price of medicine is beyond my reach considering my annual income.

Donate:
Donate whatever you can with your kind heart to save Ayansh Madan's life. Please follow and share his story on social media handles and help us receive possible funds to proceed with his treatments

Spread the word:
Recently, we have been observing more and more SMA cases are visible due to developments in life-saving therapies and medicines. Spreading the word on diagnoses and about the disease could save a few more lives.

#SMA #CureSMA #spinalmascularatrophy

Ayansh Madan has only now 4 months to collect funds for the desired treatment. We request you to help in raising funds for Ayansh's treatment and give him a chance to live healthily.

Please share, support & contribute as much as possible. Nothing is small or big. Every penny counts. Thank you all in advance.

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