My daughter Ananya is 4 years old and suffering from Congenital Dyserythropoietic Anemia (CDA). Because of this disease her body doesn't produce blood, to fill that gap she needs to take a blood transfusion .
For now she needs to take the transfusion every 20 days. As she is growing the frequency of transfusion is also increasing. When she was one year old the transfusion needed to be done once in a month. Till now she has taken almost 71 transfusions. There are some side effects of blood transfusion, one of them is increased Ferritin(Iron). Normal level for Ferritin is 350 but because of so many of transfusions, her Ferritin level is 2200.
The only treatment for Congenital Dyserythropoietic Anemia (CDA) is a Bone Marrow Transplantation(BMT).
She is taking treatment under Dr. Gaurav Kharya (Consultant Hemato-oncology &
Bone Marrow Transplant). Dr. Gaurav Kharya gives the estimate total cost of BMT to be around 30 lakhs.
As we belong to a middle class family, we are unable to afford it. But we can't see her suffer or pass away with this pain.
We have tried to get help from many NGOs and Government Organizations such as the PM relief fund but they have refused.
We now plan to arrange this money by ourselves, so we are asking for the help on social media and have started promoting our story.
You can visit the Facebook page at the following link - https://goo.gl/GPc9iN
We have found some helping hands over social media and have got the start but we are still far from our goal. We need your help to arrange the funds for the treatment to save Ananya.