Please help 2 year old Madhan come back to normal life

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Updates (4)

I am a salesman in a medical shop, belonging to a lower middle class family in Maduravoyil, Chennai .My sister is married to a coolie and is struggling to support her 2 year old boy ,Madan Raj; who has been admitted in Kanchi Kamakoti CHILDS trust Hospital in Nungambakkam,Chennai ,Tamil Nadu for the last 2 months .The first 2 weeks were spent in critical condition in ICU. after he was admitted with hematemesis( vomiting blood) .He has been diagnosed with a rare condition called extra hepatic portal vein obstruction complicated by chylothorax (leaking of fluids to chest) , esophageal perforation (hole in feeding pipe) and esophagopleural fistula(connection between feeding pipe and space around lungs). Doctors have recommended splenorenal shunt surgery ( surgery which needs specialized expertise almost similar to liver transplant) after healing of his esophageal holes. We have not been able to discharge him home because he needs hospital care for continuous chest drain , special tube feeds ,iv antibiotics and recurrent blood transfusions. Doctors suggest he needs at least 2 weeks of antibiotics from now . Then he will need surgical repair for esophageal hole followed by the operation for portal vein obstruction. The overall expenses including hospital bills and medicines already has crossed INR 5,00,000 which i have tried to meet by taking loans . The estimated cost of the two surgeries is INR 2,50,000. Other expenses including medicines and ICU costs ,blood transfusions will come to INR 2,00,000. Please help our Madhan come back to normal life .

If you want to send directly to hospital account please transfer the money to the hospital online account mentioned below and send an email to kkcth@kkcth.org mentioning the amount and the name Madhan Raj-667800

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28th September 2016

Dear Supporters,

I am Uthra Nagarajan, an Open Fellow with Milaap. I got a chance to meet two-and-a-half-year-old Madhan at his home in Maduravoyal, Chennai. He was running around, playing when I arrived. A shy kid at first, he warmed up once we started talking. Madhan is recuperating well from his surgery a couple of months ago. His mother Hemalatha was evidently happy at her son’s recovery and thanked all the supporters.

Madhan currently takes four medication a day, two of which are long term. He undergoes blood tests once in 15 days and has an endoscopy procedure scheduled for next month. “He has turned very naughty the past few weeks,” smiled Hemalatha. “He eats well and has started demanding spicy, tasty food which we cannot give him yet.” Sometimes, Madhan’s parents and grandparents eat only after he sleeps, not having the heart to refuse him the food they eat. Madhan’s diet comprises well-mashed food such as idli, idiyappam, and boiled fruits and vegetables.

He has also started playing with other children in the locality, calling them to his home. This ensures that his grandparents can keep an eye on him. “He is very particular about his medication,” chipped in his grandfather. “The moment the clock strikes 10:30 in the morning, he comes running to us for his tablets.”

Madhan’s father Yuvaraj is a mason and Hemalatha is a housewife. The couple recently had their second child Sanjay. They hope for a full recovery for Madhan, before putting him in school at the age of four years.

6th June 2016

Today was a big day for Madhan. Finally his chest tube has been removed and the surgeon has fixed his shunt operation for 3rd week of June. The dye study showed that the hole in the food pipe has almost healed but for a very small defect which will likely heal by itself . Good news is he doesn't need an operation for that hole now. He can go for the shunt surgery and everything goes well we might be able to go home by the end of this month.

Thank you everyone for the help and prayers. Madhan has started enjoying his hospital stay now. When his feeding pump alarm goes off indicating that it needs a refill , he tells his mother to start preparing his next milk feeds and doesn't stop saying it until she makes it .His antibiotics have also been changed to oral now ,so his iv line will also be removed soon.

We can't wait to see him go back home and the doctors and nurses taking care of him are excited too.

1st June 2016

Dear Supporters,

Thank you all, I can't believe there are so many nice people out there .Doctors have tied gauze like a boxing glove in Madhan's hands so he doesn't pull out his tubes.He has already done it twice in the past. The tube which bypasses the hole in his food pipe and goes all the way to the intestine is very precious .He can't eat and is dependent on this tube for food . He can't drink water too until the hole is healed. Please pray for his recovery.
Thank you

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