This 8-year-old Looks Half His Age Because Of A Rare Bone Disorder | Milaap

This 8-year-old Looks Half His Age Because Of A Rare Bone Disorder

For the last 8 years, Suprith has been fighting a severe bone disorder called Osteopetrosis and needs urgent treatment before it is too late.

What is Osteopetrosis?
Osteopetrosis, literally "stone bone", also known as marble bone disease, is an extremely rare inherited disorder whereby the bones harden, becoming denser.
8-year-old Suprith looks more like a 4-year-old because of a rare inherited bone disorder. Nothing about his life has been normal because of this disease. He hardly has friends. The kids in school bully him, and he cannot play much as even a fracture in the wrong place can be fatal.
 
The only treatment for Suprith is to under a Bone Marrow Transplant. Since Suprith has no matching donor in the family who can donate for the transplant he has to be assisted by an unknown donor. This has turned the entire operation into an expensive nightmare for the parents.

The cost of the Bone Marrow Transplant is around 24 lakh Rs and the cost of getting the donor is around 8 lakh Rs. Unfortunately, Suprith's father, Venkatesh, earns only 6000 Rs a month and does not have the funds to pay for his son's treatment.

“My income is just about Rs. 500/day. I have to care for my wife, Asha, my 1-year-old daughter, Shaanvi, Suprith and myself on this income. It has been hard, especially because Suprith’s medical expenses have been shooting up".
Your contribution can help Suprith get the treatment he deserves and save his life.


Estimation Letter
Estimation Letter
Ask for an update
4th December 2018
Dear All ,

Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.

Thank you for the love and support.

Regards,
Venkatesh (Suprith's father)
Dear All ,

Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.

Thank you for the love and support.

Regards,
Venkatesh (Suprith's father)
Rs.95,323 raised

Goal: Rs.3,200,000

Beneficiary: Venkatesh info_outline

Fundraising campaigns (2)

Supporters (45)

M
Manjunath donated Rs.500

God bless you

A
Anonymous donated $7.93
BA
Bhaktawara donated $25
P
Puneet donated $75
A
Anonymous donated Rs.1,000

God bless you. We wish you a sooner recovery

Saidul
Saidul donated Rs.500