This 8-year-old Looks Half His Age Because Of A Rare Bone Disorder

Account number: 80808080101023431
Account name: Venkatesh
IFSC code: YESB0CMSNOC

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Story

For the last 8 years, Suprith has been fighting a severe bone disorder called Osteopetrosis and needs urgent treatment before it is too late.

What is Osteopetrosis?
Osteopetrosis, literally "stone bone", also known as marble bone disease, is an extremely rare inherited disorder whereby the bones harden, becoming denser.

8-year-old Suprith looks more like a 4-year-old because of a rare inherited bone disorder. Nothing about his life has been normal because of this disease. He hardly has friends. The kids in school bully him, and he cannot play much as even a fracture in the wrong place can be fatal.

The only treatment for Suprith is to under a Bone Marrow Transplant. Since Suprith has no matching donor in the family who can donate for the transplant he has to be assisted by an unknown donor. This has turned the entire operation into an expensive nightmare for the parents.

The cost of the Bone Marrow Transplant is around 24 lakh Rs and the cost of getting the donor is around 8 lakh Rs. Unfortunately, Suprith's father, Venkatesh, earns only 6000 Rs a month and does not have the funds to pay for his son's treatment.

“My income is just about Rs. 500/day. I have to care for my wife, Asha, my 1-year-old daughter, Shaanvi, Suprith and myself on this income. It has been hard, especially because Suprith’s medical expenses have been shooting up".