This 8-year-old Looks Half His Age Because Of A Rare Bone Disorder

For the last 8 years, Suprith has been fighting a severe bone disorder called Osteopetrosis and needs urgent treatment before it is too late.
What is Osteopetrosis?
Osteopetrosis, literally "stone bone", also known as marble bone disease, is an extremely rare inherited disorder whereby the bones harden, becoming denser.

What is Osteopetrosis?
Osteopetrosis, literally "stone bone", also known as marble bone disease, is an extremely rare inherited disorder whereby the bones harden, becoming denser.

8-year-old Suprith looks more like a 4-year-old because of a rare inherited bone disorder. Nothing about his life has been normal because of this disease. He hardly has friends. The kids in school bully him, and he cannot play much as even a fracture in the wrong place can be fatal.
The only treatment for Suprith is to under a Bone Marrow Transplant. Since Suprith has no matching donor in the family who can donate for the transplant he has to be assisted by an unknown donor. This has turned the entire operation into an expensive nightmare for the parents.
The cost of the Bone Marrow Transplant is around 24 lakh Rs and the cost of getting the donor is around 8 lakh Rs. Unfortunately, Suprith's father, Venkatesh, earns only 6000 Rs a month and does not have the funds to pay for his son's treatment.
“My income is just about Rs. 500/day. I have to care for my wife, Asha, my 1-year-old daughter, Shaanvi, Suprith and myself on this income. It has been hard, especially because Suprith’s medical expenses have been shooting up".

Details for direct bank transfer / UPI payments
Bank Account details: Click here
Estimation Letter

Details for direct bank transfer / UPI payments
Bank Account details: Click here
Ask for an update
4th December 2018
Dear All ,
Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.
Thank you for the love and support.
Regards,
Venkatesh (Suprith's father)
Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.
Thank you for the love and support.
Regards,
Venkatesh (Suprith's father)
Dear All ,
Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.
Thank you for the love and support.
Regards,
Venkatesh (Suprith's father)
Here is an update on Suprith. He is at home and is doing well. His treatment is going on. He needs to take injections every day in the night. This will continue for the next 5 years.
Thank you for the love and support.
Regards,
Venkatesh (Suprith's father)
Donate
Payment options: Online, cheque pickups
Know someone in need of funds for a medical emergency?
Refer to us
Donate
Payment options: Online, cheque pickups
Create a support-fundraiser
Create a fundraising page in your name for this cause. Your friends can contribute and help us achieve the goal faster. All funds raised will go to the beneficiary.
Beneficiary:
Venkatesh
info_outline
Supporters (45)
Donated to this campaign via Bank transfer/QR Code? Click here if you can’t find your donation listed below.
M
Manjunath
donated
Rs.500
God bless you
A
Anonymous
donated
$7.93
BA
Bhaktawara
donated
$25
P
Puneet
donated
$75
A
Anonymous
donated
Rs.1,000
God bless you. We wish you a sooner recovery
Saidul
donated
Rs.500
All supporters
Donated to this campaign via Bank transfer/QR Code? Click here if you can’t find your donation listed below.
Have questions?
Email campaign organizer

You are sending a message to
Milaap
Your share could help raise $100

This 8-year-old Looks Half His Age Because Of A Rare Bone Disorder
Embed Campaign Contribute Button
Report
Ask for an update
Download payment receipt
(Bank transfer, QR Code donations)
About Milaap
Categories
Contact us
Milaap Social Ventures India Pvt. Ltd.
ClayWorks Create - building,11th KM Create Campus,Arakere Bannerghatta Rd,
Bangalore, Karnataka, India 560076- Location on Map
- feedback@milaap.org
© 2010 - 2021 milaap.org. All rights reserved.

Please wait...