I lost my 5-year-old son to the same disease in 2016. Doctors say it's genetic and when my daughter was born in December 2016, we were scared she will go through the same fate. We heaved a sigh of relief for the first time in months when all her tests came okay and she was a normal, healthy baby. But everything came crashing down as soon as she turned 3.” - Harish, father
Tragedy struck again5-year-old Siya is suffering from familial hemophagocytic lymphohistiocytosis. It is a disorder in which the immune system produces too many activated immune cells (lymphocytes) called T cells, natural killer cells, B cells, and macrophages (histiocytes). Many people with this condition can also develop neurologic abnormalities. The mortality is 50% and the last resort for the patient is to undergo a bone marrow transplant.
Bone marrow transplant is the only way outSiya has undergone bone marrow biopsy twice in past two years. She had been undergoing treatment comprising antibiotics and occasional admission to hospital for saline infusions and blood transfusions. Siya, however, is not able to cope with the disease anymore. She requires urgent bone marrow transplant to be able to have a shot at life.
Doctors say there is 60-70% chance that our child will be live a normal and healthy life, post the transplant. Honestly, if there was even a 10% chance, I would still do anything to arrange money for the operation. My husband and I have no one to go to for any help. We are still in debt from the time our son was in the hospital. We have so far spent Rs. 6 lakhs in both our childrens' treatment. We lost our firstborn; we cannot afford to lose our daughter as well. That would mean the end of the world for us.” - Nutan, mother
Siya’s father Harish is a driver, but he has been out of work for six months. Back when he had work, he used to earn anything between Rs. 8,000 to Rs. 10,000 per month. Originally from Nagpur, Maharashtra, the family came to Mumbai 3 months ago to seek treatment for their daughter. Siya’s mother, Nutan, is a homemaker.
I have no source of income now. I had to come to Mumbai with my wife, because all of this is affecting her mental well-being. She has seen our firstborn die in her lap. She is in no position to continue seeing our daughter in so much pain. We have experienced enough pain for a lifetime now. We need respite and we want our daughter back home healthy. If it kills me to arrange the fund needed for her operation, I will die happily. I just want my daughter to see the world, experience it for herself without oxygen tubes and saline injections.” - Harish
Harish and Nutan have to arrange Rs. 12 lakhs in the next 30 days to be able to give their only child a shot at life.