15-year-old Venilla has been through fire and ice ever since birth with a condition that had her continuously dribbling urine without the sensation of a full bladder. She was first diagnosed with meningomyelocele as she had a swelling in the back of her spine indicating that her neural tube is completely exposed. However, a surgery did not fix the condition, and she needed a urine catheter and a bag as a fix. Now, she has a full-blown kidney infection necessitating a kidney transplant without which she will lose her life.
"Right from when she was a baby, we were worried about this continuous urination. No matter where we went, we did not get a solution. When she was 11 years old, we took her to a pediatrician who said the reason was the swelling on her back. They operated on her and fixed the swelling. She also had a urinary bladder repair procedure, and ever since, she has had to wear a catheter to drain urine." - Malar (Vennila's mother)
One of the underlying complications of meningomyelocele is kidney failure. Vennila was being treated with medicines to support kidney functions. She was getting injections twice a weeks to treat anemia and other drugs to improve her health.
"I was on my way to school when I felt a little weak. I got a fever and shivering. I told my mother, and they took me to the hospital. The doctor had me admitted right away, and after a few tests, they said I have a urinary tract injection. My kidney had an abscess, it was failing and I needed a transplant."
Venilla had a younger sister who died of pneumonia at 2 years of age. Her father does not stick to any job and refuses to take any familial responsibility. She now lives with her mother and grandmother, who work as a housemaid and a cook respectively to earn a total income of Rs. 13,000 to support the household and her medical expenses.
This is Vennila's state today. She is unable to sit for her 10th standard exams because of her medical condition, and hopes to take it up in May or June. She wants to study computer science and become a software engineer.
You can help this little girl overcome this acute illness that has taken over her life, and help her live better. This fund will be utilized for her monthly medication which is coming around 10,000/month and for the work up of kidney transplant.
Contribute to help Vennila survive and get a better quality of life.