I am fundraising for my best buddy Luelin Leo.
Why am I fundraising?Luelin was an excellent sportsman and a fun loving boy with the prospects of a bright future when he was diagnosed at NIMHANS with Multiple Sclerosis at a young age of 23 ,May 2012.
Multiple sclerosis is is a disease of the nervous system in which the myelin sheath of neurons is damaged.This damage impairs the conduction of signals in the affected nerves. In turn, the reduction in conduction ability causes deficiency in sensation, movement, cognition, or other functions depending on which nerves are involved.
It came as a shock to everybody who knew him. He had won several competitions in various athletic events representing the Sports Authority of India and representing the district in Football as a part of a championship winning team.
He was advised to take Avonex. He used to take it once weekly for 10 months which costed Rs 10,000 for one injection.
In October 2013, there was further worsening needing mild support to walk, associated with slow speech.For this he consulted and was advised totake T Methylprednisolene to which he poorly responded. Again he took Avonex 50mg BD for 6 months.Since his parents could not afford the costs for his treatment, the medications were stopped.He was tried on with Ayurvedic and Homeopathic medicines.He also developed reduced movements on left side.
Since 2013 till day, he is bedridden and he is completely dependent on care givers.Today all he can do is move a couple of fingers and cannot sit up or go to the bathroom without assistance.
Now he is advised to take Natalizumab injection -required for his treatments which costs about Rs 80,000 per month excluding tax and he is required to take it for three next year’s.Apart from this there are other medications like speech therapy and physiotherapy and hospitalization costs that are involved.