5-year-old Affected With One of The Rarest Diseases Needs Urgent Help | Milaap

5-year-old Affected With One of The Rarest Diseases Needs Urgent Help




It all started when Likhit was just 2 years old. His parents saw that his pillow was covered in blood and baby Likhit kept gargling. He had started bleeding from the gums. Likhit is 4 years old now, but the bleeding hasn’t stopped. He has a disease that is so rare that there are only 500 diagnosed cases in the world. His parents cannot afford the cure, and they have gone as far as writing to PM Modi for help.

“There is never any pain or any other kind of irritation, he just bleeds every 15 days. You know what happens when we lose that much blood.” - Bharath (Father)

Likhit is brave, but it is not enough to save him from this struggle

Likhit suffers from a very rare genetic disorder, LAD Type III & Glanzman Thrombasthenia which causes him to bleed profusely until he gets blood transfusions. Every 15 days, they run to the hospital with Likhit holding his hands over his mouth, trying to stop the blood from oozing out. He does not like the taste of it. He is not able to spit it out. He is scared that his teeth may all fall out.

"Likhit knows that it is hospital time when he bleeds, and he knows the entire drill, but he never cries, neither is he cranky. He goes around smiling and making friends in the ward, talking to everyone. Due to his thin veins, nurses insert the injection in his neck, a painful procedure, but he is very brave."

Over the last 2 years of treatment, Bharath has already spent 8 lakhs in treatment, and he needs 40 lakhs more

The bleeding has increased, and so have the visits to the hospital. While the financial strain can be managed, Likhit's tiny body cannot handle the iron buildup from transfusions. It is likely that his organs will get damaged from frequent transfusions. This could be fatal.

“I am paying more than 30k a month because the frequency of the bleeding has gone up. Only last week, he got the platelets transfusion, and now again within a week we had to admit him for another platelet transfusion. Can you imagine what this does to a child, struggling with this disease for years?"

Father seeks help from PM Modi to help save his child

Bharath who works with payroll management company earns Rs. 27000 a month, exhausting more than that for Likhit's treatment. He is the only earning member of his family, looking after his son, wife and aged father. He sometimes works on Loss of Pay, as he has exhausted all his leaves trying to reach out to friends, acquaintances, government officials, support groups to ask for help for Likhit, but those contributions have not been sufficient. Recently, he even sent a moving letter to PM Narendra Modi asking for financial help for his son, awaiting a response.



Likhit's bone marrow transplant itself would cost him 40 lakhs. Bharath knows that he will not able to arrange for such a large amount on his own. Sometimes, he loses hope that he would ever be able to save his son.

"It is Likhit's smiling face, that keeps me and my wife keep up the struggle," says Bharath.

He will grow up to be a linguist if he survives this disease

Likhit is a talented kid, and he already knows to speak in 4 languages, including, English, Telegu, Kannada, Tamil, and now wants to learn Malayalam from Youtube. He also loves to have ice-cream, since it is soft and melts right away in his mouth. Biting anything hard makes his gums bleed. If his condition deteriorates further, it would be very hard to save him.

"People say wait until you can pay for the treatment yourself. We can wait. But if his bleeding gets worse, he won't survive. We don't want to stop hoping that someone will help."
Likhit is just 4 years old. He should be playing with friends and family instead of blood. Your contribution can save him.

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4th August 2020
Dear Brothers & Sisters (Supporters),

Thank you so much for all the support that you have shown for my son Likhit.

You have showered so much love and support in these tough times. I can't thank you enough for that. Your generous contributions really helped Likhit in his recovery. I have been trying hard to make ends meet and collect funds for Likhit's treatment. The entire process has taken a toll on us mentally physically & financially.

You've been of great help! The BMT surgery procedure started on 24th July.  I donated stem cells on 3rd August.

Please keep supporting my child, he is very close to defeating this disease.

I once again thanking you all for the love and support. We shall keep you posted.



Regards,
Bharath Mohan

(LIKHIT’s Father)

Dear Brothers & Sisters (Supporters),

Thank you so much for all the support that you have shown for my son Likhit.

You have showered so much love and support in these tough times. I can't thank you enough for that. Your generous contributions really helped Likhit in his recovery. I have been trying hard to make ends meet and collect funds for Likhit's treatment. The entire process has taken a toll on us mentally physically & financially.

You've been of great help! The BMT surgery procedure started on 24th July.  I donated stem cells on 3rd August.

Please keep supporting my child, he is very close to defeating this disease.

I once again thanking you all for the love and support. We shall keep you posted.



Regards,
Bharath Mohan

(LIKHIT’s Father)

10th June 2020
Dear Brothers & Sisters (Supporters),

You have showered so much love and support in these tough times. I can't thank you enough for that. Your generous contributions really helped Likhit in his recovery.



Although, he still bleeds from his mouth profusely every 8-10 days and every time he has to get blood transfusions for the lost blood. He is on fluids as he can't have solid food anymore. His only cure is a bone marrow transplant which is scheduled in the next two days. He is currently getting treatment for an unexpected infection which is taking a toll on my child.

Please keep supporting my child, he is very close to defeating this disease.



I once again thanking you all for the love and support.

Regards,
Bharath Mohan
(Likhit’s Father)
Dear Brothers & Sisters (Supporters),

You have showered so much love and support in these tough times. I can't thank you enough for that. Your generous contributions really helped Likhit in his recovery.



Although, he still bleeds from his mouth profusely every 8-10 days and every time he has to get blood transfusions for the lost blood. He is on fluids as he can't have solid food anymore. His only cure is a bone marrow transplant which is scheduled in the next two days. He is currently getting treatment for an unexpected infection which is taking a toll on my child.

Please keep supporting my child, he is very close to defeating this disease.



I once again thanking you all for the love and support.

Regards,
Bharath Mohan
(Likhit’s Father)
25th May 2020
Dear Brothers & Sisters (Supporters),

Thank you so much for all the support that you have shown for my son Likhit.

Likhit is admitted again in the hospital and I shall keep you posted on the further course of treatment.

I am once again thanking you all for the love and support.

Regards,
Bharath Mohan
(Likhit’s Father)
Dear Brothers & Sisters (Supporters),

Thank you so much for all the support that you have shown for my son Likhit.

Likhit is admitted again in the hospital and I shall keep you posted on the further course of treatment.

I am once again thanking you all for the love and support.

Regards,
Bharath Mohan
(Likhit’s Father)
Rs.7,936,820 raised

Goal: Rs.9,500,000

Beneficiary: Likhit info_outline

Supporters (5734)

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Farheen donated Rs.1,000
A
Anonymous donated Rs.1,000
PS
Padmini donated Rs.2,500

Get well soon!!

A
Anonymous donated Rs.500
A
Anonymous donated Rs.500
A
Anonymous donated Rs.250