Help Child Rithesh to get Haplo Identical Bone Marrow Transplantation. | Milaap

Help Child Rithesh to get Haplo Identical Bone Marrow Transplantation.

“My son’s disease has only one cure – a bone marrow transplant. He did not have siblings, so we tried to have a baby. Twice we had to abort since both babies ended up having the same disease. Finally, when our healthy daughter was born, we found out that she is not a match.”

I’m Shantakumari. My 3-year-old son, Ritesh, has been suffering from a genetic blood disorder called Thalassemia. He will be severely anemic for life. Imagine, when his organs do not get oxygen because there is not much hemoglobin in his blood. His whole body gets affected. His condition is getting worse, and we have exhausted everything we have on the blood transfusions he needs every 15 days. Now, he needs a major surgery to survive.

My son spends most of his time around blood in the hospitals

When he was 3 months old, Ritesh stopped having milk. He used to look so pale. I got very worried and took him to a doctor who tested his blood. We found out that he was anemic. That was the first time he had a blood transfusion. The problem continued and we were referred to CMC Vellore where a genetic test showed that both my husband and I had the Thalassemia gene, because of which our child is now suffering.

Ritesh needed blood transfusions every 20 days back then. He would sleep through the day when the hemoglobin levels went down. His spleen would enlarge, eyes would swell, and he would sometimes even turn yellow. I cannot tell you how many times we have had to admit him to the ER.

There is always an obstacle on the path to the cure

The cure? Bone marrow transplant. Often, they choose a sibling to donate. He was our only child back then. To save his life, we tried to have another child. It was heartbreaking, but I had to abort twice because the fetus ended up with the same disease. As a mother, I cannot even express what I went through. When our daughter was born, it was traumatic to hear that she was not a match. I am glad that she is healthy.

We opted for the donor registry. There was no close match to what Ritesh needed. The only option now is haplo-identical bone marrow transplant using me as a donor. It is an expensive procedure and the only way to save my son.

He will not have a childhood if this continues

Almost 4 years old, Ritesh is full of energy and enthusiasm now. It is hard to make him sit in one place. He bounces off the floors and walls. At this age, that is how children are. The downside to that – he gets exhausted very easily and needs transfusions every 10-15 days.

The minute we step into the hospital, he makes me promise not to let the nurse prick him twice with the needle. ‘One time, Amma. Please, it hurts if it is too many times’ he says. He knows that he is not well and he cooperates with the staff. He does not even cry when the needle goes in unless they miss and try again. Should he really be this way at this age?

How can you help

My husband, Anjaneyalu, is a school teacher in Ananthapur. He is struggling to earn every rupee so we can save Ritesh. I’m by myself here in Bangalore with my 8-month-old daughter and 4-year-old son, fighting this war, while my husband is struggling on his own there. The surgery is estimated to cost over Rs. 36 Lakhs.   

We need help to keep our son alive. Your contribution will help us get through this nightmare.
Disease details from Narayana Hrudayalaya Bangalore
Disease details from Narayana Hrudayalaya Bangalore
Surgery Breakup
Surgery Breakup
Ask for an update
26th March 2018
Dear Supporters,

Here is an update on Rithesh's health.

He is undergoing stem cell collection followed by Chemotherapy Sessions.
Last would be Bone Marrow Transplantation, will keep you posted about the same.

Stem cells collection is done and three chemotherapy sessions have already been completed.

This Sunday they will collect Donor stem cells from the mother and Doctors planned BMT on Monday.

Thank you for your love and support.
Regards.
Dear Supporters,

Here is an update on Rithesh's health.

He is undergoing stem cell collection followed by Chemotherapy Sessions.
Last would be Bone Marrow Transplantation, will keep you posted about the same.

Stem cells collection is done and three chemotherapy sessions have already been completed.

This Sunday they will collect Donor stem cells from the mother and Doctors planned BMT on Monday.

Thank you for your love and support.
Regards.
3rd March 2018
Dear Supporters,

Here is a quick update on Rithesh's health.

He was admitted in hospital for Bone Marrow Transplantation treatment.
The chemotherapy and Stem selection phases are in progress.
2nd cycle of Chemotherapy is completed and the 3rd stage would start next week.
Once Chemotherapy is done the next phase BMT operation starts.

Thank you for your kind support. Please pray for his health and speedy recovery.
Dear Supporters,

Here is a quick update on Rithesh's health.

He was admitted in hospital for Bone Marrow Transplantation treatment.
The chemotherapy and Stem selection phases are in progress.
2nd cycle of Chemotherapy is completed and the 3rd stage would start next week.
Once Chemotherapy is done the next phase BMT operation starts.

Thank you for your kind support. Please pray for his health and speedy recovery.
1st November 2017
Dear Supporters,

Here is an update on Rithesh.
Rithesh is undergoing regular check-ups in the hospital. Due to increase in the iodine level in the blood, he is undergoing blood transfusion every 20 days.
The doctors have advised scheduling a liver transplant upon arranging the funds.

Thank you for your support and love. Please keep him in your prayers.

Regards,
Anjaneyulu
Dear Supporters,

Here is an update on Rithesh.
Rithesh is undergoing regular check-ups in the hospital. Due to increase in the iodine level in the blood, he is undergoing blood transfusion every 20 days.
The doctors have advised scheduling a liver transplant upon arranging the funds.

Thank you for your support and love. Please keep him in your prayers.

Regards,
Anjaneyulu
Rs.360,271
raised of Rs.3,675,000 goal

96 Supporters

Beneficiary: V ANJANEYULU info_outline

Supporters (96)

M
MRSHIVAKUMARVULLI donated Rs.500
Phani
Phani donated Rs.500

get well soon

AD
Akbar donated Rs.2,500
Manish
Manish donated Rs.1,000
A
Anonymous donated Rs.1,000

god bless this child...

YM
Yash donated Rs.500

May God cure child's disease make him healthy, bless him much.