Help Little Bristi To Fight Thalassemia

Dear Well Wishers,
Many of you have enquired about Bristi. Here is what is happening at this moment.
Sorry for the extreme delay.

Why the operation is getting delayed:

• Bristi had her ferritin level risen to around 4700 ng/mL. With such high ferritin level this operation cannot be done because ideallly it should be around 1000 ng/mL. After the Ferriscan done and Deferiprone 250 administered for about a month the ferritin level of Bristi has now gone down to 2608 ng/mL. Doctors are hoping it will be below 1000 ng/mL in couple of weeks.
• The date of birth of Bristi’s sister was incorrectly noted in the HLA report which is to be submitted to the hospital before the operation starts. This correction has been done but it took time.

Few other challenges:

• The cord blood which was taken from Bristi’s sister has now been measured 25ml. But for the successful operation about 80ml is required. To bridge this gap blood will be directly collected from the heart of Bristi’s sister (she is just 2-and-a-half-years-old).
• Since both the sisters do not have same blood group (Bristi has O+ and the sister has A+) some extra antigen has to be procured. This will require about Rs 2.5Lakh more.
• The doctor as well as Arnab wants that imported chemo is used for the operation. This has lesser side-effects than the Indian one. This will cost about Rs 2 Lakh extra.

Post operation issues:

• As per the rough estimate for medicine and other care Bristi would need about Rs 25 thousand per month for twelve months once the operation is over.

Date of operation:’
Tata Medical Doctors will schedule the operation on first week of January 2019. The entire process will take about one month.

Current fund status:

• Prime Minister and Chief Minister funds: Rs 4.0 Lakh
• MLA Laxmi Ratan Shukla has arranged: Rs 2.5 Lakh
• Direct to bank deposits: Rs 1.7 Lakh
• Milaap: Rs 1.5 Lakh
• Journalist Shiladitya has arranged: Rs 0.5 Lakh

Total: Rs 10.2 Lakh
At present the revised cost of total operation: Rs 22 Lakh (will share the details soon)
Bristi is still short of about Rs 12 Lakh!

Thanks for all your help.

We have got few updates to share :

1. Bristi is supposed to have her operation done sometime late October 2018.
2. We have started to withdraw from donation amount by producing medical bills. The first claim has been submitted on 20-Aug-2018. Amount : Rs 23457.

Thanks everyone for help and support.

Hi all,

Arnab has received INR 300000 from Prime Minister's National Relief Fund. and INR 1 lakh from the Chief Minister's Relief Fund. The same has been reflected on the campaign page.

Arnab and all his close friends are trying hard to reach the number.
Currently, Bristi immediately needs couple of injections. These injections cost about INR 1 lakh.

Please spread the word about the campaign!

Thanks,