This disease leads to progressive loss of body movement, mental deterioration and seizures leading ultimately to an early death as there is no cure for this disease.
There are a few medicines which help with the seizures and help the baby to get sleep. They have even helped the baby smile for the first time after 2 years of her sickness. She has started smiling at her mother though she can barely move her facial muscles.
Aphi's parents have been struggling emotionally, physically, and financially ever since the disease took hold shortly after her First Birthday. With their limited means, they have been caring for their daughter with an incurable disease.
Your help and prayers would be very gratefully welcomed.
With your contributions, we hope to provide medicines for Aphi for at least one year.
Note - For Hospital queries, you can verify with the help of Ms. Songam Woleng (9986962520) who is a senior nurse in NIMHANS