Help Little Girl with Rare & Fatal Disease get her Medicines | Milaap
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Help Little Girl with Rare & Fatal Disease get her Medicines

Aphi (Full Name - Worshanphi RS) is a little girl who is 3 years old and has a rare genetic disease called NCL disease (Neuronal Ceroid Lipofuscinoses).

This disease leads to progressive loss of body movement, mental deterioration and seizures leading ultimately to an early death as there is no cure for this disease.

There are a few medicines which help with the seizures and help the baby to get sleep. They have even helped the baby smile for the first time after 2 years of her sickness. She has started smiling at her mother though she can barely move her facial muscles.

Aphi's parents have been struggling emotionally, physically, and financially ever since the disease took hold shortly after her First Birthday. With their limited means, they have been caring for their daughter with an incurable disease.

Your help and prayers would be very gratefully welcomed.

With your contributions, we hope to provide medicines for Aphi for at least one year.

Note - For Hospital queries, you can verify with the help of Ms. Songam Woleng (9986962520) who is a senior nurse in NIMHANS
Diagnosis from NIMHANS
Diagnosis from NIMHANS
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@NIMHANS Hospital
@NIMHANS Hospital
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8th October 2018
Dear Donors,

Aphi has undergone two weeks of physiotherapy back in Manipur and is back in her hometown with her mother.

Thank you again for your support to the family in this difficult times.

 
Dear Donors,

Aphi has undergone two weeks of physiotherapy back in Manipur and is back in her hometown with her mother.

Thank you again for your support to the family in this difficult times.

 
1st October 2018
Dear Supporters,

Thank you for all your love.

As mentioned earlier, Aphi is back home in Manipur with her mother. We will be sending her medicines from Bangalore on a monthly basis. Hers is a rare incurable genetic disorder, and this will not allow her to survive for more than two to three years. The only hope we have are the medicines for seizures and to help her sleep. Because of her terminal illness, her mother looks after her round the clock.

It is our humble request to you all to please keep her and her family in your prayers.

Regards,
Aso
Dear Supporters,

Thank you for all your love.

As mentioned earlier, Aphi is back home in Manipur with her mother. We will be sending her medicines from Bangalore on a monthly basis. Hers is a rare incurable genetic disorder, and this will not allow her to survive for more than two to three years. The only hope we have are the medicines for seizures and to help her sleep. Because of her terminal illness, her mother looks after her round the clock.

It is our humble request to you all to please keep her and her family in your prayers.

Regards,
Aso
27th September 2018
Thank you for your generosity ... Aphi and her mother have gone back home to Manipur and she has been showing a slight improvement.
The amount that has been collected would be handed over to the family to pay for her medicines as well as to pay off the debts that the family incurred during the treatment in NIMHANS.
Thank you for your generosity ... Aphi and her mother have gone back home to Manipur and she has been showing a slight improvement.
The amount that has been collected would be handed over to the family to pay for her medicines as well as to pay off the debts that the family incurred during the treatment in NIMHANS.
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.119,618 raised

Goal: Rs.240,000

Beneficiary: Worshanphi RS info_outline

Supporters (79)

MI
Milaap Impact Partner donated Rs.200

Matching payment towards Anonymous’ contribution

A
Anonymous donated Rs.1,000
MI
Milaap Impact Partner donated Rs.200

Matching payment towards Anonymous’ contribution

A
Anonymous donated Rs.1,000

You’ Doing a great job by helping this little girl. I really hope she gets well soon.

MI
Milaap Impact Partner donated Rs.100

Matching payment towards Anonymous’ contribution

A
Anonymous donated Rs.500