Help Little Adeeb Undergo Bone Marrow Transplant | Milaap

Help Little Adeeb Undergo Bone Marrow Transplant

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Please help my sister save her son from this fatal disease. Here are her words :

We would like to introduce you to our elder son, Adeeb. He is a seven year old boy who is usually an active, game-loving kid. Our little innocent son has a grave medical condition. After numerous tests and treatments, we learnt that our son has a very rare genetic disease which is X-linked adrenoleukodystrophy (X-ALD). It occurs 1 in 20,000 people and it affects the nervous system and adrenal glands that is caused by a variation (mutation) in the ABCD1 gene and is inherited in an X-linked chromosome. Sadly, there is no cure for this disease. However, stem cell transplantation may stop the progression of ALD if done when neurological symptoms first appear. Gradually, as the disease ravages their brain, their symptoms grow worse, including blindness and deafness, seizures, loss of muscle control, progressive dementia and turn fatal. 

For a child who met all his milestones and seemed to have a typical first few years, Adeeb has a whole different picture today. The symptoms are showing itself more prominent as time goes by and we are extremely worried. The onset of childhood cerebral ALD is usually between ages four and ten years. The prognosis and survival rate is generally poor, particularly if the disease is not correctly diagnosed before significant symptoms develop.

There was no one we knew who had seen something similar when we first started on the diagnostic journey. We tried all kinds of different approaches, but hit a dead end everywhere. No Cure. The doctors have advised to do a bone marrow transplant which will help to stop the spreading of this disease and slowly reduce the symptoms. This alone is costing us 45 Lakhs and we aren’t financially sound to carry on with this operation. As my husband is the donor, he also will be undergoing various procedures and will be prepped weeks before the operation. We were told that doing this as early as possible will reduce complications and might help to save our son.

We would be so grateful if you could help us raise this amount and help us to see our young Adeeb play once again with his little brother. Any small contribution would be appreciated. As our final, humble request, please include us and Adeeb in your prayers, as we believe that it can do miracles. We thank you in advance for all your support, though we do not know who each of you are, it's a great gesture that you have come forward to help us.
Bone Marrow Transplant - Break-Up
Bone Marrow Transplant - Break-Up
MRI Brain Scan
MRI Brain Scan
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21st March 2019
Dear Supporters,

Thank you for the immense amount of support and love.

We have some good news to share with you all. The bone marrow transplant operation was successfully completed. We have to visit the hospital once every week and in case of any emergency. Right now, he is under protective care for 6 months, and he is slowly stabilizing. He is on his way to recovery.

We are all truly amazed and humbled by the support we have received from you all.
 
Please keep his recovery in your prayers.

Thanks
Dear Supporters,

Thank you for the immense amount of support and love.

We have some good news to share with you all. The bone marrow transplant operation was successfully completed. We have to visit the hospital once every week and in case of any emergency. Right now, he is under protective care for 6 months, and he is slowly stabilizing. He is on his way to recovery.

We are all truly amazed and humbled by the support we have received from you all.
 
Please keep his recovery in your prayers.

Thanks
4th February 2019
Dear Supporters,

Thank you for the wonderful support. Here is an update on Umar's health.

He has been discharged from the hospital last week. He is visiting the hospital once in 4 days for regular checkups. He have some eye sight problem due to some nerve damage. He will be under going treatment for eye sight problem. He is under observation for the next 2-3 months.

Once again, thank you all for the love and support. Please pray for his speedy recovery.

Regards,
Umar
Dear Supporters,

Thank you for the wonderful support. Here is an update on Umar's health.

He has been discharged from the hospital last week. He is visiting the hospital once in 4 days for regular checkups. He have some eye sight problem due to some nerve damage. He will be under going treatment for eye sight problem. He is under observation for the next 2-3 months.

Once again, thank you all for the love and support. Please pray for his speedy recovery.

Regards,
Umar
16th January 2019
Dear Supporters,

Thank you for supporting Adeeb.

He underwent the transplant earlier this month and he is still in the operation theater. His father was the donor. After the transplant he was very critical and the doctors wanted him to stay under observation.

His blood count is improving now, but his urinary output was very less. The doctor said that he will be in the operation theater for another week. After that, he will be shifted to the general ward.

Thank you all.

Regards,
Umar
(Uncle)
Dear Supporters,

Thank you for supporting Adeeb.

He underwent the transplant earlier this month and he is still in the operation theater. His father was the donor. After the transplant he was very critical and the doctors wanted him to stay under observation.

His blood count is improving now, but his urinary output was very less. The doctor said that he will be in the operation theater for another week. After that, he will be shifted to the general ward.

Thank you all.

Regards,
Umar
(Uncle)
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.2,058,258 raised

Goal: Rs.4,500,000

Beneficiary: Adeeb info_outline

Supporters (778)

MI
Milaap Impact Partner donated Rs.350

Matching payment towards Usamah’s contribution

US
Usamah donated US $25

Praying it all goes well.

MI
Milaap Impact Partner donated Rs.800

Matching payment towards MRMOHAMMEDYASEERA’s contribution

M
MRMOHAMMEDYASEERA donated Rs.4,000
MI
Milaap Impact Partner donated Rs.1,000

Matching payment towards INSTAKITNO.019811’s contribution

I
INSTAKITNO.019811 donated Rs.5,000