Niharika Hirani, a 7 year old girl, is suffering from Aplastic Anemia since the year 2012. During her course of treatment at Rajiv Gandhi Cancer Institute & Research Centre, New Delhi has been advised for Bone Marrow Transplant. The family has already lost two of her siblings due to the same disease at a very young age of 13 and 14 respectively; therefore they cannot go for the sibling matched allogeneic transplant.
The estimated cost for the bone marrow transplant with the prevalent condition, and if we are able to find a matching Stem Cell donor from India, will come around Rupees 15 lacs. The family belongs to extremely lower middle class, her father; the sole bread winner runs a small cloth shop in partnership at Indore. Two kids of the family have suffered from the same disease in the past and did not survive. The parents have therefore exhausted all their savings and funds available to them from different sources.
The condition of the Niharika is very critical, and often needs platelet and blood transfusion which leads to more frequent hospital visits, hence severe financial burden. The annual family income is Rupees 1,50,000/- which clearly states that they cannot afford the cost of her Bone Marrow Transplant, hence we need funds to support her treatment at the earliest.
Generally, stem cell transplant day is a day of celebration and a new beginning for a family but sadly, Niharika might miss this important milestone, due to the unaffordable cost of transplant.