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Help little Debika to fight a very rare life-threatening disease

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Updates (4)

Dear Friends,

It's been a tough time for me and my family. My 3 months older little daughter Debika is suffering from a rare genetic disease - LYMPHOPROLIFERATIVE SYNDROME DUE TO XIAP GENE MUTAION.
She was firstly seen to doctor with symptoms of fever, loose stools, decreased oral intake, decreased urine output. After diagnosis and DNA test report the doctor has confirmed us about the rare disease.
She is under intensive treatment by Apollo Hospitals, Chennai. And doctors have suggested Stem Cell Therapy through Bone Marrow Transplant as the only treatment possible to fight this deadly disease. And huge cost of Stem Cell therapy is well-known to everyone. It's very difficult for a mediocre person like me to arrange the huge money alone. Hence I seek your kind support for the cause so that we can provide the best possible treatment to my daughter. Please keep my little daughter in your prayers. She needs that the most. I consider myself very much unfortunate to say that I had a baby boy who also died from Ulcerative Colitis. We had done his treatment in Apollo and I am completely exhausted with all my savings for his treatment. Still we couldn't save him. This time we are trying our best to fight for my daughter.Kindly contribute to the cause to the best of your ability and spread the cause among your near and dear ones so that we can fight this difficult time with great vigor. Donations of any size are welcome and accepted with immense gratitude.
Thanking you all for your unconditional support and prayers.
Regards
Ajoy Mandal
Father of Patient (Debika Mandal)

You can also do a bank transfer to the below mentioned account setup for this fundraising campaign:

Account number: 80808080101034054
Account name: Ajay Mandal
IFSC code: YESB0CMSNOC

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WBC Test

Debika DNA Test report

Debika health Diagnosis Report

Cost Estimation of Debika Bone Marrow Transplant

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7th July 2018

Hi supporters,
We had taken little devika to Chennai Apollo hospital on 29th June for Bone marrow transplant. Doctors checked her thoroughly and they were happy with Devika health till now. Doctors suggested to continue the IVIG injection. Doctors adviced to wait another 5-6 months for Bone marrow transplant because of only 50% match with her parents Gene. As devika' s age is only 6 months and her health is stable docs told not to operate so early. Because the BMT process is lengthier in case of 50% match of Gene. Docs prescribed some other medicine and told us to visit after another 3-4 months for BMT. But Bone marrow transplant has to be done to cure her illness. Doctors will do BMT after approx 5-6 months when Devika's body would be ready to take the BMT.
We have really no words how grateful we are to all of you for supporting us in these difficult time.
With all your prayers and support we are sure that Devika will recover fully.
We will keep you posted regularly about the progress of Debika health and BMT process
Thank you once again. May god bless you all.

Ajay Mandal
Debika's father.

2nd June 2018

Dear supporters,
Thank you all for your support.

As of now, Little Debika is taking monthly IVIG injection in Durgapur hospital. We will be taking her to Apollo Chennai at the end of this month for her bone marrow transplant.

Will update again when transplant will start.
We are really thankful to all of you for supporting us in this difficult time. May God bless you all.
Thanking you,

Ajay Mandal
Debika's Father

22nd April 2018

Dear Supporters,

20th April Debika was taken to Health world Hospital Durgapur for giving IVIG Injection after doing Intravenus Cannulla Premedication. It was continued for 6 hours. It is a part of Debika Treatment. This IVIG Injection will be given to Debika every 4 weeks till Bone Marrow Transplant. Expected date of Bone Marrow Transplant will be 1st of July and that process will be continued for approx 3-4 weeks. Some of the snaps are given below.

Now I take the opportunity to thank you all for your spontaneous response, support and blessings so far. Please do share this post in your circle so that it can reach to everybody and our daughter will continue to smile forever. Thank you once again.