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Help little Debika to fight a very rare life-threatening disease
Dear Friends,
It's been a tough time for me and my family. My 3 months older little daughter Debika is suffering from a rare genetic disease - LYMPHOPROLIFERATIVE SYNDROME DUE TO XIAP GENE MUTAION.
She was firstly seen to doctor with symptoms of fever, loose stools, decreased oral intake, decreased urine output. After diagnosis and DNA test report the doctor has confirmed us about the rare disease.
She is under intensive treatment by Apollo Hospitals, Chennai. And doctors have suggested Stem Cell Therapy through Bone Marrow Transplant as the only treatment possible to fight this deadly disease. And huge cost of Stem Cell therapy is well-known to everyone. It's very difficult for a mediocre person like me to arrange the huge money alone. Hence I seek your kind support for the cause so that we can provide the best possible treatment to my daughter. Please keep my little daughter in your prayers. She needs that the most. I consider myself very much unfortunate to say that I had a baby boy who also died from Ulcerative Colitis. We had done his treatment in Apollo and I am completely exhausted with all my savings for his treatment. Still we couldn't save him. This time we are trying our best to fight for my daughter.Kindly contribute to the cause to the best of your ability and spread the cause among your near and dear ones so that we can fight this difficult time with great vigor. Donations of any size are welcome and accepted with immense gratitude.
Thanking you all for your unconditional support and prayers.
Regards
Ajoy Mandal
Father of Patient (Debika Mandal)
It's been a tough time for me and my family. My 3 months older little daughter Debika is suffering from a rare genetic disease - LYMPHOPROLIFERATIVE SYNDROME DUE TO XIAP GENE MUTAION.
She was firstly seen to doctor with symptoms of fever, loose stools, decreased oral intake, decreased urine output. After diagnosis and DNA test report the doctor has confirmed us about the rare disease.
She is under intensive treatment by Apollo Hospitals, Chennai. And doctors have suggested Stem Cell Therapy through Bone Marrow Transplant as the only treatment possible to fight this deadly disease. And huge cost of Stem Cell therapy is well-known to everyone. It's very difficult for a mediocre person like me to arrange the huge money alone. Hence I seek your kind support for the cause so that we can provide the best possible treatment to my daughter. Please keep my little daughter in your prayers. She needs that the most. I consider myself very much unfortunate to say that I had a baby boy who also died from Ulcerative Colitis. We had done his treatment in Apollo and I am completely exhausted with all my savings for his treatment. Still we couldn't save him. This time we are trying our best to fight for my daughter.Kindly contribute to the cause to the best of your ability and spread the cause among your near and dear ones so that we can fight this difficult time with great vigor. Donations of any size are welcome and accepted with immense gratitude.
Thanking you all for your unconditional support and prayers.
Regards
Ajoy Mandal
Father of Patient (Debika Mandal)
You can also do a bank transfer to the below mentioned account setup for this fundraising campaign:
- Account number: 80808080101034054
- Account name: Ajay Mandal
- IFSC code: YESB0CMSNOC
WBC Test
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Debika DNA Test report
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Debika health Diagnosis Report
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Cost Estimation of Debika Bone Marrow Transplant
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26th January 2019
Hii all,
We are now in Chennai Apollo Hospital for further treatment of our little Devika. Already 2 rounds of Chemotherapy cycle completed starting from December 15th and another on January 10th.
Now, Dr. Revati Raj, who is looking after my Child has given date of 4th February to start the Bone Marrow Transplant process.
For consecutive 7 days starting from 5th February High Dose Chemo injection will go on. Doctor told that during that time some physical problem may arise in Debiva's Health.
Then stem cell of her father will be transplanted to Devika's body. Till the transplanted stem cell not adjusted to her body, some health problem may arise like loose stool, abdominal pain, fever.
This BMT process will go on for at least 2 weeks till everything be normalized.
This bone marrow transplantation process is very risky and little has to undergo a lot of health difficulty.
Please pray for My Devika so that she can recovered to normal life.
Thank you once again for your kind support.
We will keep you all posted regarding her health after the BMT process started.
Ajoy Mandal
Devika's Father.
We are now in Chennai Apollo Hospital for further treatment of our little Devika. Already 2 rounds of Chemotherapy cycle completed starting from December 15th and another on January 10th.
Now, Dr. Revati Raj, who is looking after my Child has given date of 4th February to start the Bone Marrow Transplant process.
For consecutive 7 days starting from 5th February High Dose Chemo injection will go on. Doctor told that during that time some physical problem may arise in Debiva's Health.
Then stem cell of her father will be transplanted to Devika's body. Till the transplanted stem cell not adjusted to her body, some health problem may arise like loose stool, abdominal pain, fever.
This BMT process will go on for at least 2 weeks till everything be normalized.
This bone marrow transplantation process is very risky and little has to undergo a lot of health difficulty.
Please pray for My Devika so that she can recovered to normal life.
Thank you once again for your kind support.
We will keep you all posted regarding her health after the BMT process started.
Ajoy Mandal
Devika's Father.
Hii all,
We are now in Chennai Apollo Hospital for further treatment of our little Devika. Already 2 rounds of Chemotherapy cycle completed starting from December 15th and another on January 10th.
Now, Dr. Revati Raj, who is looking after my Child has given date of 4th February to start the Bone Marrow Transplant process.
For consecutive 7 days starting from 5th February High Dose Chemo injection will go on. Doctor told that during that time some physical problem may arise in Debiva's Health.
Then stem cell of her father will be transplanted to Devika's body. Till the transplanted stem cell not adjusted to her body, some health problem may arise like loose stool, abdominal pain, fever.
This BMT process will go on for at least 2 weeks till everything be normalized.
This bone marrow transplantation process is very risky and little has to undergo a lot of health difficulty.
Please pray for My Devika so that she can recovered to normal life.
Thank you once again for your kind support.
We will keep you all posted regarding her health after the BMT process started.
Ajoy Mandal
Devika's Father.
We are now in Chennai Apollo Hospital for further treatment of our little Devika. Already 2 rounds of Chemotherapy cycle completed starting from December 15th and another on January 10th.
Now, Dr. Revati Raj, who is looking after my Child has given date of 4th February to start the Bone Marrow Transplant process.
For consecutive 7 days starting from 5th February High Dose Chemo injection will go on. Doctor told that during that time some physical problem may arise in Debiva's Health.
Then stem cell of her father will be transplanted to Devika's body. Till the transplanted stem cell not adjusted to her body, some health problem may arise like loose stool, abdominal pain, fever.
This BMT process will go on for at least 2 weeks till everything be normalized.
This bone marrow transplantation process is very risky and little has to undergo a lot of health difficulty.
Please pray for My Devika so that she can recovered to normal life.
Thank you once again for your kind support.
We will keep you all posted regarding her health after the BMT process started.
Ajoy Mandal
Devika's Father.
2nd October 2018
Dear Supporters,
Thank you for the wonderful support. Again we have taken Little angel Devika for IVIG injection. This injection is required to be given to Devika on monthly basis in order to prevent infection.
As we have informed in an earlier update that Doctors in Apollo Chennai will perform bone marrow transplant around January 2019 when Devika age will be around 1 year. We will keep you posted reg the exact date of operation.
Please give blessings to the little angel. Thank you all for being with us in these difficult times.
Thank you!
Thank you for the wonderful support. Again we have taken Little angel Devika for IVIG injection. This injection is required to be given to Devika on monthly basis in order to prevent infection.
As we have informed in an earlier update that Doctors in Apollo Chennai will perform bone marrow transplant around January 2019 when Devika age will be around 1 year. We will keep you posted reg the exact date of operation.
Please give blessings to the little angel. Thank you all for being with us in these difficult times.
Thank you!
Dear Supporters,
Thank you for the wonderful support. Again we have taken Little angel Devika for IVIG injection. This injection is required to be given to Devika on monthly basis in order to prevent infection.
As we have informed in an earlier update that Doctors in Apollo Chennai will perform bone marrow transplant around January 2019 when Devika age will be around 1 year. We will keep you posted reg the exact date of operation.
Please give blessings to the little angel. Thank you all for being with us in these difficult times.
Thank you!
Thank you for the wonderful support. Again we have taken Little angel Devika for IVIG injection. This injection is required to be given to Devika on monthly basis in order to prevent infection.
As we have informed in an earlier update that Doctors in Apollo Chennai will perform bone marrow transplant around January 2019 when Devika age will be around 1 year. We will keep you posted reg the exact date of operation.
Please give blessings to the little angel. Thank you all for being with us in these difficult times.
Thank you!
7th July 2018
Hi supporters,
We had taken little devika to Chennai Apollo hospital on 29th June for Bone marrow transplant. Doctors checked her thoroughly and they were happy with Devika health till now. Doctors suggested to continue the IVIG injection. Doctors adviced to wait another 5-6 months for Bone marrow transplant because of only 50% match with her parents Gene. As devika' s age is only 6 months and her health is stable docs told not to operate so early. Because the BMT process is lengthier in case of 50% match of Gene. Docs prescribed some other medicine and told us to visit after another 3-4 months for BMT. But Bone marrow transplant has to be done to cure her illness. Doctors will do BMT after approx 5-6 months when Devika's body would be ready to take the BMT.
We have really no words how grateful we are to all of you for supporting us in these difficult time.
With all your prayers and support we are sure that Devika will recover fully.
We will keep you posted regularly about the progress of Debika health and BMT process
Thank you once again. May god bless you all.
Ajay Mandal
Debika's father.
We had taken little devika to Chennai Apollo hospital on 29th June for Bone marrow transplant. Doctors checked her thoroughly and they were happy with Devika health till now. Doctors suggested to continue the IVIG injection. Doctors adviced to wait another 5-6 months for Bone marrow transplant because of only 50% match with her parents Gene. As devika' s age is only 6 months and her health is stable docs told not to operate so early. Because the BMT process is lengthier in case of 50% match of Gene. Docs prescribed some other medicine and told us to visit after another 3-4 months for BMT. But Bone marrow transplant has to be done to cure her illness. Doctors will do BMT after approx 5-6 months when Devika's body would be ready to take the BMT.
We have really no words how grateful we are to all of you for supporting us in these difficult time.
With all your prayers and support we are sure that Devika will recover fully.
We will keep you posted regularly about the progress of Debika health and BMT process
Thank you once again. May god bless you all.
Ajay Mandal
Debika's father.
Hi supporters,
We had taken little devika to Chennai Apollo hospital on 29th June for Bone marrow transplant. Doctors checked her thoroughly and they were happy with Devika health till now. Doctors suggested to continue the IVIG injection. Doctors adviced to wait another 5-6 months for Bone marrow transplant because of only 50% match with her parents Gene. As devika' s age is only 6 months and her health is stable docs told not to operate so early. Because the BMT process is lengthier in case of 50% match of Gene. Docs prescribed some other medicine and told us to visit after another 3-4 months for BMT. But Bone marrow transplant has to be done to cure her illness. Doctors will do BMT after approx 5-6 months when Devika's body would be ready to take the BMT.
We have really no words how grateful we are to all of you for supporting us in these difficult time.
With all your prayers and support we are sure that Devika will recover fully.
We will keep you posted regularly about the progress of Debika health and BMT process
Thank you once again. May god bless you all.
Ajay Mandal
Debika's father.
We had taken little devika to Chennai Apollo hospital on 29th June for Bone marrow transplant. Doctors checked her thoroughly and they were happy with Devika health till now. Doctors suggested to continue the IVIG injection. Doctors adviced to wait another 5-6 months for Bone marrow transplant because of only 50% match with her parents Gene. As devika' s age is only 6 months and her health is stable docs told not to operate so early. Because the BMT process is lengthier in case of 50% match of Gene. Docs prescribed some other medicine and told us to visit after another 3-4 months for BMT. But Bone marrow transplant has to be done to cure her illness. Doctors will do BMT after approx 5-6 months when Devika's body would be ready to take the BMT.
We have really no words how grateful we are to all of you for supporting us in these difficult time.
With all your prayers and support we are sure that Devika will recover fully.
We will keep you posted regularly about the progress of Debika health and BMT process
Thank you once again. May god bless you all.
Ajay Mandal
Debika's father.
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Beneficiary:
Debika Mandal
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