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I Sold Everything, Borrowed Money, Lost 2 Children Already

 “He should be running around the house wreaking havoc. Instead, my son is always crying in pain, unable to walk or even sit. We have already lost 2 children to this disease. I do not want to lose Yazha also!”

It took us years to understand a disease that seems so harmless but is actually devilish. I was afraid for Yazhavendan when he was born. We held our breath until he turned a year old. Just when we thought he was perfectly healthy, diarrhea began. Imagine if whatever your child eats or drinks comes out the other end in just a few seconds, and throughout the day he continues to poop even though he is not eating. Yazha is dying because this disease is literally draining the life out of him. He is only 3 years old, and only an intestinal transplant can save him.

We have lost two children already to a disease we did not understand 
Lakshmi and I have been going through this nightmare for 6 years now. Our first child, Ezhil, was just 11 months old, when he died. We could not even process what happened; we were in shock. We did not even imagine that our second child, Rithika, would fall victim to the same disease. She had just turned 1. God took her from us.

“A mother should never see her children pass before her. I have buried two of my children without even understanding what took their lives. I was fearing for every moment of Yazhavendan’s life. When he turned 1, and he remained healthy, we took it as a sign, that God was done with us. But, just after his second birthday, we saw the pattern. We see our baby slowly dying.” 

Unfortunately, this rare disease hit our third child as well
On the day of his second birthday, Yazha had severe diarrhea. Like his brother and sister, he needed hospitalization every few days. We have tried our best to save him. So many needles have hurt this little body. We finally understood what has been happening. He has primary intestinal lymphangiectasia, a rare disease (not rare for my family, I guess), in which the lymph vessels of the small intestine are enlarged. So lymphatic fluid leaks into his gut. He cannot absorb proteins.

“His intestines cannot absorb any nutrients. His body is not getting the proteins he needs to survive. Instead, everything just comes out! With every day, my son’s condition is getting worse. His face, hands and legs get swollen sometimes. He keeps crying in pain, and the same fear sets in. This time, we want to do everything possible to save him.”

There is a cure, but it is way out of our reach
Yazha is too weak for surgery. He needs an intestinal transplant. First, he needs nutritional rehabilitation. He cannot even walk, sit or even breathe. He has been in the ICU for over a month now. We have to make him strong enough for the surgery. So he needs to be in the hospital and get nutritional treatment.

“My husband used to work as a teacher. He had to quit because of the increasing frequency of the hospital visits. Now he is not able to find another job. We do what we can for money. We have already spent over 10 lakhs. This treatment is going to cost us Rs 50 lakhs. We know that even someone who earns 10 times more than us cannot afford it. We need your help to save our son!”

Yazhvendhan's father has no source of income and have exhausted all his savings

Please help us

I sold everything I had, am neck deep in debt, lost two children and am now trying to save my third. I hope this time fate won’t be so cruel to us. I can’t imagine living without him, we have nothing to hold on but to you as our last hope. - Vel Murugan.

Your contribution can help these parents from losing another child to this terrible disease.
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19th July 2018
Dear Supporters,

Thank you for your love and support. This couldn't have been possible without you.

With inexplicable grief, we're having to inform to you that baby Yazhvendhan passed away. His body could not endure the stress and started giving up. He was responding well to the treatment being given to him and was recovering until he developed a fungal infection in the liver. Treatment for the same was going on but eventually, he stopped responding.

We appreciate all the support you have shown towards this little boy so far. All the funds raised through the campaign have been utilised towards his treatment so far.

Please pray for his family. May his soul rest in peace.

Regards,
Priya



Dear Supporters,

Thank you for your love and support. This couldn't have been possible without you.

With inexplicable grief, we're having to inform to you that baby Yazhvendhan passed away. His body could not endure the stress and started giving up. He was responding well to the treatment being given to him and was recovering until he developed a fungal infection in the liver. Treatment for the same was going on but eventually, he stopped responding.

We appreciate all the support you have shown towards this little boy so far. All the funds raised through the campaign have been utilised towards his treatment so far.

Please pray for his family. May his soul rest in peace.

Regards,
Priya



16th July 2018
Dear Supportersm

Baby Yazhvendhan is suffering from Sepsis( Fungal Infection) in the liver. He is on 24 hours monitoring and intensive treatment in the Paediatric ICU.  He is not stable and currently cannot be transplanted until he recovers from infection and is on Anti-fungal treatment.

Please continue to pray for him.

Regards,
Priya

Dear Supportersm

Baby Yazhvendhan is suffering from Sepsis( Fungal Infection) in the liver. He is on 24 hours monitoring and intensive treatment in the Paediatric ICU.  He is not stable and currently cannot be transplanted until he recovers from infection and is on Anti-fungal treatment.

Please continue to pray for him.

Regards,
Priya

5th July 2018
Dear Supporters,

Here is a quick update on Baby Yazhvendhan's health.

Baby Yazhvendhan suffered multiple infections due to the catheter line but he had gradually recovered now.

He is currently stable and he is on total parental nutrition. The baby has attained the weight of 10 kgs which is a good sign of progress. Will keep you posted with further developments.

Thank you so much for the love and support.
Regards,
Priya
Dear Supporters,

Here is a quick update on Baby Yazhvendhan's health.

Baby Yazhvendhan suffered multiple infections due to the catheter line but he had gradually recovered now.

He is currently stable and he is on total parental nutrition. The baby has attained the weight of 10 kgs which is a good sign of progress. Will keep you posted with further developments.

Thank you so much for the love and support.
Regards,
Priya
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
$100
raised of $5,000 goal

1 Supporter

Beneficiary: Velmurugan Gopal info_outline

Supporters (1)

PK
Prathap donated US $100
8 months ago