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Mimin's Head Will Explode If You Don't Help Him

The parents of a eight month-old toddler, Mimin, born with a potentially fatal disease, hydrocephalus that causes cerebrospinal fluid to build up on the brain, are seeking help for their daughter’s treatment.

Born to a family of poor landless laborers in Tengnoupal district of Manipur in northeastern India, Seiminsang Kipgen, fondly called him Mimin, has been suffering silently for the past five months. Help People in Need, a local non-profit, has started a crowdfunding campaign for the poor girl in Milaap (India’s version of Gofundme) hoping that the people from world over would pitch in to help as they did in the case of Roona Begum who underwent a life-changing surgery in 2013 with the funds raised through crowdfunding. 

Hydrocephalus is a rare condition where the cerebrospinal fluid accumulates in the brain, causing extreme swelling and a buildup of pressure. It is more common among infants and older adults. The condition is caused by overproduction, obstruction or lack of absorption of the cerebral fluid in the brain.

The rare condition of poor little Mimin came to light on August 4 at his native village when a three-member team of Genhison WhatsApp group, led by Robert Hekai Kipgen visited the family in the village. Kipgen donated a sum of Rs. 20,000/- to the family.

Mimin is not able to keep his head straight as it is three times bigger than the size of a baby of his age. He could not crawl, sit up or roll over. The skin of his head has stretched so much that it has pulled his eyelids over his eyes and forced his eyes to recess deep into their sockets making it impossible for him to see properly.

Mimin is the sixth child of Lhunkhomang Kipgen and Nengneithem Kipgen. Like his other siblings, Mimin was born normal and weighed 4kg at birth. But his mother Nengneithem was shocked to see the sudden weight gain in the baby after a month. “I was at a loss as to how the baby gained so much in a month. I took him to a nearby dispensary for immunization and came to know that he weighed 9kg,” says mother Nengneithem Kipgen.

“With every passing day, his head started growing bigger. He would just lie in the bed and keep crying intermittently. It became very difficult for us to carry him and take him anywhere," says Nengneithem. In the next two months, his weight increased at a rather slow pace. Doctors at Moreh Hospital confirmed that weighed 11 Kg in April. “I feel completely helpless. If his head keeps growing like this, it will rupture someday. Also, the tears keep rolling down his cheeks even when the baby is not crying,” Nengneithem, the home maker and mother of six who has spend most of her time tending to Mimin.

The baby weighs 15kg and, of which, 10kg is the weight of his head only.  The family has taken the boy to several state-run hospitals, but they have advised the parents to take Mimin to a better-equipped hospital in a metropolitan city.

Father Lhunkhomang Kipgen, who earns less than Rs. 500 a day, somehow makes the ends meet. 'We are very poor and we were not in a position to arrange for all the funds required for the treatment. My son is in a lot of pain because his ever-swelling head. But I could still see him smiling sometimes that makes me think that his cognitive functions might still be intact”, said 43-year-old.

Breastfeeding him and patting his inflated skull, Nengneithem says: “I want my son to live healthy and grow up educated with a bright future as both of us no less than illiterate and I don’t want him to be like us. I want to the people out there please help my baby as you did in the case of Roona Begum. We are pinning our hopes on you.”

As the condition of the boy worsens further their neighbors have cruelly name him the “alien boy”

Jeffery Hangshing of the non-profit Help People in Need, which has started the fund-raising campaign for Mimin, says: “Like Roona Begum’s case caught the attention of the people world over in 2013, we are confident that the people will come forward and help the baby and save his life.”
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12th September 2017
Dear supporters,

Boisang's parents traveled all the way to Delhi to get the child consulted by Dr. Sandeep Vaishya at Fortis Hospital Delhi. Upon consultation and deeper investigation, the doctor concluded that only 3% of Boisang's brain tissue is working. The child has a poor prognosis and a surgery will not be of any help. Here is the letter from Dr. Sandeep Vaishya:

Hence the family decided against the treatment and have traveled back to their village. The funds raised for Mimin have not been utilised for Boisang.

Given that funds have remained unutilized, we'll be refunding all donors as we believe it's the right thing to do.

The Milaap team will be initiating the refunds back to your card/bank account on 18th Sep, Monday.  In case you want the money to be used towards any campaign on Milaap - please inform them before 18th.

Please note that refunds take 3-5 working days from date of refund to reflect in your bank account/card statement.

We wish we had a more positive update to share. Thank you for your support, thoughts and prayers for the families.

-Jeffree Hangshing

30th August 2017
The family of Mimin called us for a meeting day before and told us that the state government of Manipur  will be taking care of Mimin at RIMS hospital Imphal and expenses for the surgery and investigation will be borne by them. Thanks to few donors, Gaurav and Jassi, they were offered treatment at Delhi - however, the family politely turned it down citing travel constraints for extended period of time during treatment.

Since they wont be spending money on treatment as mentioned earlier in this campaign page, we've  decided to stop this campaign. The family has profusely thanked all the donors who contributed. Here's their letter

The funds raised were yet to be utilized. After speaking to the Milaap team, here’s how we can proceed with the funds raised so far. 
  1. You can request for a refund by replying to this email within 7 days. Milaap team will initiate the same. Also, just a heads up, it usually takes 3-5 working days for the funds to reflect in your bank account. 
  2. We are looking to support a similar child in need - Boisang, a 3 year old child from Manipur with similar condition of hydrocephalus - Boisang. The family is currently in Delhi to seek medical intervention and treatment there. Fortis has agreed to treat the child. Please find the estimate letter from the doctor below. Given the urgency of the need, we've set up a fundraiser for the child and any available funds from this campaign will be used towards the treatment. Rest assured, we'll post the estimate letter and bills as treatment progresses. The story was covered by New York Post   

We request you to support Boisang, but the choice is yours.  please let us know by replying to this email.

Again, I want to thank you for being a part of this life-changing experience.

Jeffree Hangshing
Campaign  Organiser.
9th August 2017

Northeast today article bout Mimin, thank you all for the support.
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
raised of Rs.30,000 goal

1 Supporter

Beneficiary: Seiminsang Kipgen info_outline

Supporters (1)

Judy donated Rs.1,000
11 months ago