My 4-Month-Old Baby Boy Is Suffering From A Rare DiseaseMy 4-month-old baby boy is suffering from Luekocyte Adhesion Defect, a rare immuno-defeciency disease. He was diagnosed when he was just a month old. My wife, Shilpa and I were devasted to hear that our new born baby is suffering from a rare disease. With great difficulty, we treated him till now. We have an got an opportunity to cure him but we need help to do this.
We Lost Our First Child In Three MonthsAs parents we went through a difficult time when we lost our first child at three months. Our world came to end. We didn't get a chance to be our child for long. This baby came as a blessing. We were overjoyed but now we are on the verge of losing him as well if we cannot continue his treatment.
Need Your Help To Help Our Son Stay Alive
He has been on treatment since the first month of his birth. He is undergoing treatment at Narayana Hrudalaya, Mazumdar Shaw Medical Center, Bangalore. Since he is suffering from a rare condition, doctors have suggested a bone marrow transplant as a permanent cure. The estimation given for the transplant is 23-25 lakhs which included the charges for the donor. Since both of us are not a macth for him, doctors need to find a unrelated donor.
We are really worried for our son since he is really small but in order to save his life, this is the only option.
How You Can Help
My father is a farmer and he sold a small piece of land he had to help us. Now we are helpless. We have lost a child once, now we don't want to lose him. But 25 lakhs is a huge amount we have to arrange. Your support will help our baby stay alive.