I Don’t Want To Lose Another Baby To A Disease That Killed My First | Milaap
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I Don’t Want To Lose Another Baby To A Disease That Killed My First

Why am I Fundraising?  
I am arpita S. Ghadge. My 2 month young baby Avighna is fighting with liver disease called Criggler Najjar Syndrome. Our first baby Prapti was died because of same liver disease .we can not saved her that time because of financial condision . Avighna is young fighter with a strong will power . after all investigation doctor suggest Avighna`s  liver needs liver transplant as early as possible.
About Avighna


 Avighna was born in 9th month of pregnancy. His birth weight is 3 kg. After 7 days we observed that his eyes were yellow and were showing symptoms of jaundice. soon he was diagnosed with rare liver condition called Criggler Najjar Syndrome. Doctors then suggested a surgery called liver transplant. So Avighna need to undergo liver transplant.
His Global Hospital, Mumbai
UHID no is 105126285
Doctor suggest to give phototherapy at home 10 to 12 hour for control his bilirubin till liver transplant  surgery.


What is Crigglar Najjar Syndrome

Criggler Najjar Syndrome is a rare inherited disorder affecting the metabolism of bilirubin, a chemical formed from the breakdown of the heme in red blood cells. The disorders results in a form of nonhemolytic jaundice, which results in high levels of unconjugated bilirubin and often leads to brain damage in infants.
We have gone to several hospitals to see what is the best we can do for Avighna Doctors have carried out tests and confirmed that both I and shailesh are suitable donors for Avighna .although liver transplant is the only way to save our baby Avighna. The huge sum of RS 2550000 lac required to carry out. The process is impossible to arrenge. Only your support can help us save our baby Avighna.


What do I plan to do with the fund
Avighna’s hospital ( Global Hospitals, Mumbai ) has provided the following breakdown for the funds.
 Liver Transplant Surgery Estimate


estimate letter
estimate letter
Ask for an update
14th December 2018
Dear Supporters,

Thank you for the support. Avighna's domino transplant is cancelled from the hospitals because of medical complications. We are now planning for an ABO Imcamparitable Transplant. Will keep you posted.

Thank you!
Dear Supporters,

Thank you for the support. Avighna's domino transplant is cancelled from the hospitals because of medical complications. We are now planning for an ABO Imcamparitable Transplant. Will keep you posted.

Thank you!
27th November 2018
Dear Supporters,

Thank you all for your support.

The doctors have found a donor from Sri Lanka, and the surgery will most probably happen in the next week. As of now Avighna is at home and is doing fine.

He is continuing the photo-therapy treatment and his condition is normal.

Thank you all so much for your support.

Regards,
Arpita
(Mother) 
Dear Supporters,

Thank you all for your support.

The doctors have found a donor from Sri Lanka, and the surgery will most probably happen in the next week. As of now Avighna is at home and is doing fine.

He is continuing the photo-therapy treatment and his condition is normal.

Thank you all so much for your support.

Regards,
Arpita
(Mother) 
16th November 2018
Dear Supporters,

I am thankful for all the blessings showered on my son!

I am glad to inform that Avighna has been recovering slowly. His photo-therapy session continues. He occasionally has viral fever which is subdued with antibiotics.

The doctors have found a donor. The surgery is scheduled for the upcoming week. Hopefully all will go well.

I thank all of you for the support and request you to continue sharing the campaign!

Regards,
Arpita (Mother)
Dear Supporters,

I am thankful for all the blessings showered on my son!

I am glad to inform that Avighna has been recovering slowly. His photo-therapy session continues. He occasionally has viral fever which is subdued with antibiotics.

The doctors have found a donor. The surgery is scheduled for the upcoming week. Hopefully all will go well.

I thank all of you for the support and request you to continue sharing the campaign!

Regards,
Arpita (Mother)
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.0 raised

Goal: Rs.2,550,000

Beneficiary: Avughna ghadge info_outline