Lakshmi and I have been going through this nightmare for 6 years now. Our first child, Ezhil, was just 11 months old, when he died. We could not even process what happened; we were in shock. We did not even imagine that our second child, Rithika, would fall victim to the same disease. She had just turned 1. God took her from us.
“A mother should never see her children pass before her. I have buried two of my children without even understanding what took their lives. I was fearing for every moment of Yazhavendan’s life. When he turned 1, and he remained healthy, we took it as a sign, that God was done with us. But, just after his second birthday, we saw the pattern. We see our baby slowly dying.”
On the day of his second birthday, Yazha had severe diarrhea. Like his brother and sister, he needed hospitalization every few days. We have tried our best to save him. So many needles have hurt this little body. We finally understood what has been happening. He has primary intestinal lymphangiectasia, a rare disease (not rare for my family, I guess), in which the lymph vessels of the small intestine are enlarged. So lymphatic fluid leaks into his gut. He cannot absorb proteins.
“His intestines cannot absorb any nutrients. His body is not getting the proteins he needs to survive. Instead, everything just comes out! With every day, my son’s condition is getting worse. His face, hands and legs get swollen sometimes. He keeps crying in pain, and the same fear sets in. This time, we want to do everything possible to save him.”
Yazha is too weak for surgery. He needs an intestinal transplant. First, he needs nutritional rehabilitation. He cannot even walk, sit or even breathe. He has been in the ICU for over a month now. We have to make him strong enough for the surgery. So he needs to be in the hospital and get nutritional treatment.
“My husband used to work as a teacher. He had to quit because of the increasing frequency of the hospital visits. Now he is not able to find another job. We do what we can for money. We have already spent over 10 lakhs. This treatment is going to cost us Rs 50 lakhs. We know that even someone who earns 10 times more than us cannot afford it. We need your help to save our son!”
Yazhvendhan's father has no source of income and have exhausted all his savings
Please help us