“Since his birth, all my Amar has known is suffering. Almost every month, we have to rush him to the hospital. Last year someone told us that if we go to the Golden Temple in Amritsar and pray earnestly, our prayers will be answered. We have been so helpless all this while as we watched our little son going through so much pain that we wasted no time. We went to Amritsar with only one prayer in mind - ‘Amar should recover soon.’ But nothing seems to make my son any better. He is 8-year-old and weighs just 18 kgs. The doctors have said that a bone marrow transplant is his only chance to live but we are too poor to afford that.” - Balwinder Kaur, mother of Amarpreet.
Amarpreet with his mother in front of Golden Temple, Amritsar last year
Little Amarpreet has hardly had a normal childhood as he has always been in and out of hospitalsEver since he was born, Amarpreet has been fighting against numerous illnesses. Initially, it was difficult to figure out what was wrong with Amar. It was only in 2014 that he was diagnosed with Chronic Granulomatous Disease (CGD). It is a rare, inherited immunodeficiency that affects certain white blood cells affecting about four to six people in every million. People with this condition have weak immune systems that do not function properly, leaving the body vulnerable to chronic inflammation and frequent bacterial and fungal infections. The doctors have said that Amarpreet has to be on antibiotics his entire life and only a bone marrow transplant can help him survive.
“Amar is very weak and he can hardly sit up on the bed for five minutes. He complains of a severe pain in his legs and in his joints. He bleeds through his nose and often passes stools with blood. He has rashes all over his body and we had to admit him in the hospital last year for boils that had covered his eyes. We pass every moment fearing the worst, fearing that we might lose our little son.”
Kabul and Balwinder taking care of their son
The disease has forced Amar to be inside his home and he misses the family outings terribly
“Amar has always loved aeroplanes and I remember every time a plane flew over our home, he would go out and and try following the plane as he ran through the fields of mustard. These days, he is so weak that even though he wants to go watch planes flying by, he can’t do that. I look around and see little children in my neighborhood excited about Diwali - Amar too keeps asking about our plans for Diwali. I try to make him understand that next year he too will join them. As I say this to him, I pray to God that Amar’s wish comes true.”
Amarpreet on one of the family outings with his little sister and father
The parents are struggling very hard to afford the life-saving treatment that their son needsBalwinder’s husband, Kabul Singh used to work in a milk factory near their small village in Patiala, Punjab. But ever since, Amarpreet has been sick Kabul hasn’t been able to go to work. His days are spent in running to the hospital and taking care of his son.
The family sells the milk of the buffaloes they have at their place and that fetches them Rs 6000-7000 per month. Needless to say, it is not enough for Amar’s transplant. The helpless parents had mortgaged their land for 2 lakhs with which they have started their son’s treatment. Now all their money is exhausted and they need another 25 lakhs for the transplant. Their younger daughter Hasunpreet (6) is a perfect match for Amar but money is a major constraint. There is no way that Kabul and Balwinder can arrange for such a huge sum without help.
How you can help8-year-old Amar is a bright child who loves going to school and is the topper of his class. But a rare disease has put his life to a standstill and made him very weak. He needs an urgent bone marrow transplant. But his parents are too poor to afford that. Your kind support can give Amarpreet a new life and bring back happiness for these desperate parents.
Your generous contribution can help Amar get a healthy life