Affectionate Secured Home for Alzheimer's - ASHA | Milaap

Affectionate Secured Home for Alzheimer's - ASHA

History
The founder of HOPE EK A.S.H.A. is a medical doctor practicing in Greater Kailash, New Delhi since 1980, as well running this NGO, in the aid of Senior Citizens suffering from Alzheimer's disease and their caregivers since 2001.

This work was started by her (founder) all alone in 1999 after the death of her mother, who suffered from Alzheimer disease when no one had any knowledge of this disease. She (Founder) was the caregiver for her mother for five years. After her mother passed away she started visiting homes of similar patients to counsel the family and their caregivers.

During this journey, few volunteers joined her in her mission and on 28th December 2000, the first death anniversary of her beloved mother, an informal support group was formed. She along with other volunteers with her started helping and giving respite to family caregivers of such patients when in need.

It was Saturday evening dated 10.02.2001, she (founder) received a call from one Ms. Radhika D. Srivastava who introduced her as a reporter of Health sector in "The Times of India" daily Newspaper. Ms. Radhika had queries about the difficulties founder had experienced, as a caregiver. Their discussion continued for nearly two hours.

And with founder consent , next morning on Sunday 11.02.2001 Ms. Radhika published the whole discussions in the form of an article in daily Newapaper "The Times of India" at Page 3, under the heading “LIFE IN THE TWILIGHT ZONE” along with phone numbers of founder which brought together 235 families from all over Delhi and other States, the same day. The plight of every family was almost the same. The main issues identified were lack of awareness about the disease, its management, denial, guilt, Isolation and economic burden.

The Founder either talked or visited every caregiver caring for their beloved ones as per their need with her volunteers.

More families joined her in due course and on 03.09.2001 this informal support Group was registered as NGO “Hope Ek A.S.H.A.” under the Societies Registration Act XXI of 1860 with the Registrar of Societies, Delhi.
ABOUT Hope Ek A.S.H.A. - HEA

HEA is now a charitable society, registered under the Societies Registration Act 1860 in the year 2001, dedicated to the care of Senior Citizens suffering from Alzheimer’s / Dementia (Memory Loss) and their caregivers through its committed team of medical professionals and volunteers. Till date HEA has completed 18 years in the service to humanity and has been helping families suffering from Alzehimer's disease.

Alzheimer's is a type of dementia that causes problems with memory thinking and behavior. Symptoms usually develop very slowly and get worse over a period of time, becoming severe enough to interfere with daily tasks.

Alzheimer's disease usually starts in late middle age or in old age that result in progressive memory loss, impaired thinking, disorientation and changes in personality and mood.

Once a person is diagnosed with Alzheimer’s disease, the long journey of caring begins. The family needs to be counselled and supported so that they accept this change in their life.

Care is the most crucial and vital for an Alzheimer's patient. CAREGIVERS ARE THE LIFELINE OF SUCH PATIENTS. It is a 24X7 caring, the burden on the caregivers is so huge that they also need to be supported.

In India normally family takes care of these patients. India lacks "Alzheimer Care" professionals.  

HEA is holding hands of such family caregivers who are taking care of their beloved Alzheimer patients. Founder being doctor also take care of the patients.

HEA also focuses to convert Domestic helps to "Alzheimer Carer" so that they give respite to the family caregivers.

Having done this we feel that much more needs to be done.

Activities of HEA
Mass Awareness about Alzheimer disease
Home Care of patients and their caregivers.
Memory Assessment Clinic on every Sunday by appointment.
Training to Family and Professional Caregivers.
Online Support to the caregivers.

150 Mass Awareness camps were conducted on Alzheimer Disease in RWAs, Corporate, Schools, Senior citizen forums and medical forums.
Home Care for 450 families since inspection.

Memory Screening started in December 2018. 120 screening were done and 5 cases Alzheimer were detected.  Their monthly follow up is in process and Memory Screening is continued.
 
Training to Family Caregivers – Hands on training to family caregivers is continuous proces as per their patient’s behavior at their home.

Training to Professional Caregivers - one batch of Caregivers has been trained in the field of "Elder Care" and "Alzheimer Care" as a leading to employment. More to follow after the opening of an Alzehimer's Home.

Geographical reach : Delhi /NCR

Our Associates

We are standalone NGO caring for Alzheimer's disease patients and their caregivers. This is very specialized field and involves mostly Senior Citizens.
Our associates are State Bank of India, NHI, BBMB, Escorts Hospital, BSES, Indian Menopause Society, NRI Forum, Senior Citizen Forum, RWA’s, IFCI Ltd., PTC Ltd., IDBI Bank, Red Cross Society, Delhi Kannad Society, Novartis Pharma, RML Hospital, Guru Vridh Ashram, Senior Citizen Club, Rotary Club, NBRC, Charity Aid Foundation, Max Hospital, IGNOU, Old Age Forum, IMA South Delhi Branch, TFCI Ltd., Delhi Legal Service Authority, BIRDS Institute, HONDA, Suburb Magazine and India Care Foundation.
Current Scenario (World Wide and in India)

Worldwide, around 50 million people have dementia, with nearly 60% living in low- and middle-income countries. Every year  there are nearly 10 million new cases.

India is graying faster than previously projected, even though it fares better than other SAARC countries and China. The government has disclosed that the number of people above 60 will rise to around 340 million by 2050.


“India Ageing Report 2017” by the United Nations Population Fund (UNFPA) says the share of population over the age of 60 could increase from 8% in 2015 to 19% in 2050. By the end of the century, elderly will be 34% of the total population.

During 2000 - 2050, the overall population of India is expected to grow by 56% while the 60 plus population will increase by 326%. During the same period, the 80 - plus population will grow 700% with a predominance of widowed and highly dependent very old women.
India is expected to report around 19% elderly by 2050, the absolute numbers will be very large. Yet, India will be better off than China, which is expected to report 34% of population above 60 by 2050.

"The Dementia India Report 2010" has estimated that over 4.1 million people are affected by dementia in India. This is expected to be doubled by 2030.

By the age of 65 years, the proportion of people affected is 1 in 20 increasing to 1 in 5 by the age of 85 years.

Despite the magnitude, there is gross ignorance, neglect and scarcity of services for people with dementia and their families.

MISSION

Our mission is to establish an “Affectionate Secured Home Alzheimer’s - ASHA in East Delhi, for senior citizens suffering from Alzheimer Disease in stage I, II and III by involving healthy willing senior citizens of the vicinity. It will be run by our NGO's volunteers, panel doctors, caregivers, nursing staff and other professionals in the medical and para medical fields.

(One such center is in the process opening in South Delhi by July' 2019 with the support of “IFCI Social Foundation” and “The Hans foundation.”)


SECTOR(s)

Sectors of Working - Memory issues in Senior Citizens like Screening, Diagnosis, Treatment, Management, Controlling and Counseling.
Mode - Counseling conducted by panel of doctors, Counseling Physician, Neurologist, Psychologist and Counselors.

THE PROPOSED PROJECT
Affectionate Secured Home for Alzheimer's – ASHA is a comprehensive support service for people with Dementia and their families causing immense stress on the caregiver.
It can provide much needed respite to the caregiver. It allows people with dementia to lead a quality life. It also ensures physical, social and cognitive stimulation for people with Dementia in an enriching environment.

This centre will cater 30 Senior Citizens suffering from Alzheimer’s disease in stage I, II and III. It is the need of the hour.
In exceptional circumstances patients can be picked up from their home and dropped back in the evening before the sun set.


PROJECT IMPLEMENTATION PLAN

Residential Care of 10 Alzheimer Disease Patients of stage III will be taken care specially for those who have either no one at home to care for them or the caregiver is the bread earner of the family or other situations.
Day Care for 20 in stage I and II patients during the day  will be a focus for their brains stimulating exercises and other activities to keep them busy throughout the day so that they lead a quality time. Willing healthy senior citizens of the vicinity will also be involved with them in day care activities.

Facilities for residential patients
  • Regular consultation.
  • Regular health check-up once a month.
  • Daily Blood Sugar Monitoring for diabetic patients
  • Dental check up once a fortnight.
  • Podiatrist and hair care once a fortnight.
  • Annual immunization when required.
  • Management of incontinence problem for both urine and stool.
  • Keep ambulatory as long as possible with protection from physical injuries.
  • Physiological and occupational therapy - Everyday.

Facilities for DAY CARE patients
Structured activities will be conducted to keep patients busy and active.
  • Health services (Yoga, Meditation, Health Check-up Consultation etc.)
  • Group & individual brain exercises.
  • Brain stimulation exercises.
  • Day to Day Activity programs.
  • Recreation and Entertainment (television, indoor, games, music room)
  • Psycho social counseling.
  • Sensory activities & painting and colouring.
  • Blocks making / Ludo / Carom Board.
  • Outing to park.
These activities will stimulate their brain cells, make them active to slow the progress of the disease. Willing healthy senior citizens of the vicinity will also be involved and these activities will be helpful for them.

This system will also give respite to the family caregiver from the burden of care giving.

This home will be a place for support and respite to the caregiver especially for those who are the bread winners of the family.
The consulting Psychologist will select them after initial screening.

Proper counseling session for the family and professional caregivers by the clinical psychologists has to be the key factor at the center.
 
ALLIED ACTIVITIES at ASHA
 

HOME FOR Awareness of Alzehimer disease
 
We propose 12 awareness Meet on Alzheimer disease in a year where 100 people are expected in each event.
 
Memory Screening
Memory Screening Camps at least two in a month will be conducted for people above the age of 60, who are willing and visiting the home so that affected persons gets benefits of an early detection of their memory problems.
 
Caregivers training
Caregiver whether a family or a professional is the Life line of the Alzheimer disease patient. They should be compassionate towards the patient and the family. They will be involved as under:
  • Group discussion, social interactions and seminars etc.
  • Regular caregivers meets.
Professional Caregivers Training (Twice in a Month)
Caregivers will also be trained who want to become professional caregivers in the field of “Elder Care” and “Alzheimer Care” as a career leading to employment.

Young boys and girls who wish to take up caregivers as their profession will be trained to care the “Alzheimer patient” as this requires a lot of understanding about the patients moods and behaviour.

Such professionals can earn a respectable salary of Rs. 15,000.00 (Fifteen Thousand) and be independent as trained professionals are not available for Alzheimer disease patient care.
Family Caregiver Training
Hands on training to the family caregivers will be given on their beloved once.
Family caregivers need to be trained in the involvement of Police / legal Aid when in need.

IMPACT ON THE SOCIETY

This project is bound to have a remarkable impact in the society. As this will provide much needed respite to the caregivers and protect them from negative health effects caused by chronic stresses. Simultaneously will help to improve the quality of life of the senior citizen patients leading to a dignified life.

Impact explained
  • Help people seek early diagnosis of this fatal disease.
  • Eradicate social stigma attached to the illness.
  • Involve healthy willing elderly in such activities thereby giving them a purpose to improve physical, verbal ability and behavioral moods.
  • Make elders more respectable and acceptable in the society.
  • Help them to lead a quality and dignified old age.
  • Relief to working families who may not have anyone to look after dementia patient during the day.
 MONITORING AND EVALUATION:

1. Regular monitoring of the patients & caregivers at regular intervals.

2. Involving the regular family physician to submit the progress of the patients in the terms of behaviour, aggression and memory of the patients.

3. Professionals will assess the stress factor of the caregivers at regular intervals and assess impact of awareness and counselling.

4. All reports from professionals of Hope Ek A.S.H.A. and family physician of the patients will be maintained by the project manager who will analyse the data and prepare the report under supervision of medical professionals working for NGO.
Consent Letter from The Hans Foundation for Alzheimer's Home in Delhi
Consent Letter from The Hans Foundation for Alzheimer's Home in Delhi
https://www.dementiajourney.org/2019/04/23/6082/
https://www.dementiajourney.org/2019/04/23/6082/
Swami Vivekananda Award - 2016” & Speaker at World Summit USA
Swami Vivekananda Award - 2016” &  Speaker at World Summit  USA
Awarded by All India Radio and Gold medal by High Commissioner of UK
Awarded by All India Radio and  Gold medal by High Commissioner of UK
Recommendation Letter from IFCI LTD. Delhi
Recommendation Letter from IFCI LTD. Delhi
Recommendation Letter from the Hans Foundation
Recommendation Letter from the Hans Foundation
United Nation’s (ECOSOC) has given Special Consultative Status to NGO
United Nation’s (ECOSOC) has given Special Consultative Status to NGO
IFCI Social Foundation, sanctioned Rs. 21.00 Lakhs for Alzheimer Home
IFCI Social Foundation, sanctioned Rs. 21.00 Lakhs for Alzheimer Home
DD News Channel broadcast our works on Good News India Programme
DD News Channel broadcast our works on Good News India Programme
Ask for an update
7th May 2019

CROSS CULTURAL UNDERSTANDING TO REDUCE CAREGIVER STRESS

Mr. Ron Zoglin & Ms. Deborah, former family Caregivers, Authors & Dementia Advocates from Kansas City, Missouri, USA, visited Hope Ek A.S.H.A.  to share the activities for Dementia patients conducted in USA.

They shared their experiences with caregivers with Hope Ek A.S.H.A.
Caregivers from Mumbai participated via Skype / video conferencing and actively took park in the event.


10 Caregivers from Delhi NCR also attended the meet and interacted with Mr Ron & Ms. Deborah.

Their main focused was on Music therapy, gardening art work and pet therapy.

Dr. Santosh Sahi demonstrated the laughter yoga session and explained the benefits of laughing unconditionally.

It was extremely interactive session.
 
Vote of thanks was given by Dr. Sushma Chawla and a memento was presented to Mr Ron & Ms. Deborah by Shri Rakesh Nath, former member of Appellate Tribunal of Electricity and Chairman of Central Electricity Authority.

 

 

CROSS CULTURAL UNDERSTANDING TO REDUCE CAREGIVER STRESS

Mr. Ron Zoglin & Ms. Deborah, former family Caregivers, Authors & Dementia Advocates from Kansas City, Missouri, USA, visited Hope Ek A.S.H.A.  to share the activities for Dementia patients conducted in USA.

They shared their experiences with caregivers with Hope Ek A.S.H.A.
Caregivers from Mumbai participated via Skype / video conferencing and actively took park in the event.


10 Caregivers from Delhi NCR also attended the meet and interacted with Mr Ron & Ms. Deborah.

Their main focused was on Music therapy, gardening art work and pet therapy.

Dr. Santosh Sahi demonstrated the laughter yoga session and explained the benefits of laughing unconditionally.

It was extremely interactive session.
 
Vote of thanks was given by Dr. Sushma Chawla and a memento was presented to Mr Ron & Ms. Deborah by Shri Rakesh Nath, former member of Appellate Tribunal of Electricity and Chairman of Central Electricity Authority.

 

 
7th May 2019
Hi,

After the "World Alzheimer Day", on 07.10.2018 DD News Channel selected our NGO for their “Good News India” program and broadcast the working of our NGO through their programme and gave us time to speak on Alzheimer’s and the working of our NGO organization.


Hi,

After the "World Alzheimer Day", on 07.10.2018 DD News Channel selected our NGO for their “Good News India” program and broadcast the working of our NGO through their programme and gave us time to speak on Alzheimer’s and the working of our NGO organization.


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Goal: Rs.10,000,000

Beneficiary: Senior Citizen ... info_outline
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