Warm Greetings from “Hope Ek A.S.H.A.” - HEA
HEA is a charitable registered society dedicated to the care of Senior Citizens suffering from Alzheimer’s / Dementia (Memory Loss) and their caregivers through its committed team of medical professionals and volunteers for the last 18 years.
Our activities are to create Mass Awareness about the disease, Home Care of patients and their caregivers, Memory Assessment Clinic, Online Support to the needy and Training to Family & Professional Caregivers.
Why Consider Us
HEA aids Alzheimer’s disease patients and their caregivers. Founder of organization is a medical doctor. Her mother suffered from Alzheimer’s disease. She cared her for 5 years. After her death she all alone started visiting similar patients / caregivers and later on registered as NGO in 2001.
HEA is a standalone NGO caring for both Alzheimer’s disease patients and their caregivers.
HEA involves Willing Healthy Senior Citizens of the vicinity who have knac of passion.
HelpAge India recognized HEA works and donated a vehicle (Tata sumo) on dated 21.09.2001 immediately after registration of NGO 03.09.2001 (infect started work since 1999)
All India radio invited the founder president for Awareness Lecture on Alzheimer on dated 04.10.2007.
Awarded Gold Medal by the High Commissioner of UK at House of Lords, London on dated.
Rotary, Chankyapuri, Delhi donated a vehicle to NGO to ply Senior Citizens suffering from Alzheimer with volunteers.
Awarded "Swami Vivekananda & Sister Margaret Award - 2016” at Science City Auditorium, Kolkata
By virtue of work done by our NGO’s team, United Nation’s Economic and Social Council (ECOSOC) given Special Consultative Status in 2018.
Founder was also invited as a plenary speaker to present paper on "Financial & Legal Issues of Dementia Patients" at "14th World summit on Alzheimer disease, dementia research and awareness" conference at Boston, USA in 2018.
Door Darshan News Channel broadcast NGO works in their programme “Good News India” in September 2018 along with an interview with the president of NGO. Video Link : https://youtu.be/7CIFqeB2Abw
HEA is the first NGO to establish an Alzheimer’s Day Care and Residential Care Centre in Delhi with the support of IFCI Social Foundation and The Hans Foundation under the project ASHA “Affectionate Secured Home for Alzheimer's” in East of Kailash, South Delhi for Senior Citizens suffering from Alzheimer Disease and are in stage I & II by involving willing healthy senior citizens of the vicinity to provide them specialised care and a conducive environment to stay / engage them in physical and mental activities viz-a-viz a comprehensive support services ensuring physical, social and cognitive stimulation in an enriching environment. This gives respite to their families and caregivers especially who are the bread winners of the family and allows people with dementia to lead a quality life. To view video of virtual tour of ASHA click the link https://youtu.be/lrR-dEhA2Oo
It is first of its kind in Northern India and in NCT of Delhi.
Quality life for Alzheimer patients and respite to Caregivers is a major impact in the society.
Our moto is to "Give Care….. Who cannot Care Themselves…"
History of Hope Ek A.S.H.A. - HEA
The founder of HEA is a medical doctor practicing in Greater Kailash, New Delhi since 1980, as well running this NGO, in the aid of Senior Citizens suffering from Alzheimer's disease and their caregivers since 2001.
This work was started by her (founder) all alone in 1999 after the death of her mother, who suffered from Alzheimer disease when no one had any knowledge of this disease. She (Founder) was the caregiver for her mother for five years. After her mother passed away she started visiting homes of similar patients to counsel the family and their caregivers.
During this journey, few volunteers joined her in her mission and on 28th December 2000, the first death anniversary of her beloved mother, an informal support group was formed. She along with other volunteers started helping and giving respite to family caregivers of such patients when in need.
It was Saturday evening dated 10.02.2001, she (founder) received a call from one Ms. Radhika D. Srivastava who introduced her as a reporter of Health sector in "The Times of India" daily Newspaper. Ms. Radhika had queries about the difficulties experienced by her as a caregiver. Discussion continued for nearly two hours.
And with founder consent, next morning on Sunday 11.02.2001 Ms. Radhika published the whole discussions in the form of an article in daily Newapaper "The Times of India" at Page 3, under the heading “LIFE IN THE TWILIGHT ZONE” along with phone numbers of founder which brought together 235 families from all over Delhi and other States in a day. The plight of every family was almost the same. The main issues identified were lack of awareness about the disease, its management, denial, guilt, Isolation and economic burden.
The Founder either talked or visited all such patients and their caregiver caring for their beloved ones along with her team of volunteers.
More families joined her in due course and on 03.09.2001 this informal support Group was registered as NGO “Hope Ek A.S.H.A.” under the Societies Registration Act XXI of 1860 with the Registrar of Societies, Delhi.
HEA is now a charitable society dedicated to the care of Senior Citizens suffering from Alzheimer’s / Dementia (Memory Loss) and their caregivers through its committed team of medical professionals and volunteers. Till date HEA has completed 18 years in the service to humanity and has been helping families suffering from Alzehimer's disease.
HEA is holding hands of such family caregivers who are taking care of their beloved Alzheimer patients. Founder being doctor also take care of the patients.
HEA also focuses to convert Domestic helps to "Alzheimer Carer" so that they give respite to the family caregivers.
Activities of NGO
Mass Awareness about Alzheimer disease
Home Care of patients and their caregivers.
Memory Assessment Clinic on every Sunday by appointment.
Training to Family and Professional Caregivers.
Online Support to the caregivers.
158 Mass Awareness camps were conducted on Alzheimer Disease in RWAs, Corporate, Schools, Senior citizen forums and medical forums.
Home Care for 500+ families since inspection.
Memory Assessment Clinic was started in December 2018. Till date 120 screenings have been done. Out of 120, 5 cases of Alzheimer were detected. Their monthly follow up is in process. Memory Screening for all above the age of 60 is continued.
Training to Family Caregivers – Hands on training to family caregivers is continuous process as per their patient’s behavior at their home.
Training to Professional Caregivers - Caregivers are trained in the field of "Elder Care" and "Alzheimer Care" under this activity.
Geographical Reach : Delhi NCR
Our associates are State Bank of India, NHI, BBMB, Escorts Hospital, BSES, Indian Menopause Society, NRI Forum, Senior Citizen Forum, RWA’s, IFCI Ltd., PTC Ltd., IDBI Bank, Red Cross Society, Delhi Kannad Society, Novartis Pharma, RML Hospital, Guru Vridh Ashram, Senior Citizen Club, Rotary Club, NBRC, Charity Aid Foundation, Max Hospital, IGNOU, Old Age Forum, IMA South Delhi Branch, TFCI Ltd., Delhi Legal Service Authority, BIRDS Institute, HONDA, Suburb Magazine and India Care Foundation.
SECTOR(s) OF WORKING
Memory issues of Senior Citizens like Screening, Diagnosis, Treatment, Management, Controlling and Counseling.
Mode - Counseling conducted by panel of doctors, Counseling Physician, Neurologist, Psychologist and Counselors.
ABOUT ALZHEIMER’s DISEASE / DEMENTIA
Alzheimer's is a type of dementia that causes problems with memory thinking and behavior. Symptoms usually develop very slowly and get worse over a period of time, becoming severe enough to interfere with daily tasks.
Alzheimer's disease usually starts in late middle age or in old age that results in progressive memory loss, impaired thinking, disorientation and changes in personality and mood.
Once a person is diagnosed with Alzheimer’s disease, the long journey of caring begins. The family needs to be counseled and supported so that they accept this change in their life.
Care is the most crucial and vital for an Alzheimer's patient. CAREGIVERS ARE THE LIFELINE OF SUCH PATIENTS. It is a 24X7 caring, the burden on the caregivers is so huge that they also need to be supported.
In India normally family takes care of these patients. India lacks "Alzheimer Care" professionals.
Current Scenario (World Wide and in India)
Worldwide, around 50 million people have dementia, with nearly 60% living in low- and middle-income countries. Every year there are nearly 10 million new cases.
India is graying faster than previously projected, even though it fares better than other SAARC countries and China. The government has disclosed that the number of people above 60 will rise to around 340 million by 2050.
“India Ageing Report 2017” by the United Nations Population Fund (UNFPA) says the share of population over the age of 60 could increase from 8% in 2015 to 19% in 2050. By the end of the century, elderly will be 34% of the total population.
During 2000 - 2050, the overall population of India is expected to grow by 56% while the 60 plus population will increase by 326%. During the same period, the 80 - plus population will grow 700% with a predominance of widowed and highly dependent very old women.
India is expected to report around 19% elderly by 2050, the absolute numbers will be very large. Yet, India will be better off than China, which is expected to report 34% of population above 60 by 2050.
"The Dementia India Report 2010" has estimated that over 4.1 million people are affected by dementia in India. This is expected to be doubled by 2030.
By the age of 65 years, the proportion of people affected is 1 in 20 increasing to 1 in 5 by the age of 85 years.
Despite the magnitude, there is gross ignorance, neglect and scarcity of services for people with dementia and their families.
OUR MISSION - 2020
Our mission is to establish a “Dementia Village” for 100 Alzheimer disease patients gradually in stage I, II and III by involving healthy willing senior citizens of the vicinity around NCR of Delhi.
PROJECT IMPLEMENTATION PLAN
Residential Care of Alzheimer Disease Patients of stage will be taken care specially for those who have either no one at home to care for them or the caregiver is the bread earner of the family or other situations.
Facilities for residential CARE patients
- Regular consultation.
- Regular health check-up once a month.
- Daily Blood Sugar Monitoring for diabetic patients
- Dental check up once a fortnight.
- Podiatrist and hair care once a fortnight.
- Annual immunization when required.
- Management of incontinence problem for both urine and stool.
- Keep ambulatory as long as possible with protection from physical injuries.
- Physiological and occupational therapy - Everyday.
Structured activities will be conducted to keep patients busy and active.
- Health services (Yoga, Meditation, Health Check-up Consultation etc.)
- Group & individual brain exercises.
- Brain stimulation exercises.
- Day to Day Activity programs.
- Recreation and Entertainment (television, indoor, games, music room)
- Psycho social counseling.
- Sensory activities & painting and colouring.
- Blocks making / Ludo / Carom Board.
- Outing to park.
Counseling sessions for the family and professional caregivers by the clinical psychologists has to be the key factor at the center.
ALLIED ACTIVITIES at Dementia Village PROJECT
- Awareness Meet on Alzheimer disease
- Memory Screening Camps will be conducted for people above the age of 60, who are willing and visiting the home so that affected persons gets benefits of an early detection of their memory problems.
- Professional Caregivers training - Caregivers will also be trained who want to become professional caregivers in the field of “Elder Care” and “Alzheimer Care” as a career leading to employment.
- Family Caregiver Training - Hands on training to the family caregivers will be given on their beloved once. Family caregivers need to be trained in the involvement of Police / legal Aid when in need.
- Group discussion, social interactions and seminars etc.
- Regular Caregivers Meets.
IMPACT ON THE SOCIETY
This project is bound to have a remarkable impact in the society. As this will provide much needed respite to the caregivers and protect them from negative health effects caused by chronic stresses. Simultaneously will help to improve the quality of life of the senior citizen patients leading to a dignified life.
Help people seek early diagnosis of this fatal disease.
Eradicate social stigma attached to the illness.
Involve healthy willing elderly in such activities thereby giving them a purpose to improve physical, verbal ability and behavioral moods.
Make elders more respectable and acceptable in the society.
Help them to lead a quality and dignified old age.
Relief to working families who may not have anyone to look after dementia patient during the day.
MONITORING AND EVALUATION:
1. Regular monitoring of the patients & caregivers at regular intervals.
2. Involving the regular family physician to submit the progress of the patients in the terms of behavior, aggression and memory of the patients.
3. Professionals will assess the stress factor of the caregivers at regular intervals and assess impact of awareness and counselling.
4. All reports from professionals of Hope Ek A.S.H.A. and family physician of the patients will be maintained by the project manager who will analyse the data and prepare the report under supervision of medical professionals working for NGO.
Looking for a donor to donate space around NCR of Delhi for Dementia Village.