Help Abhay fight a genetic disorder: Duchenne Muscular Dystrophy (DMD)

I am  Abhay Ramakumar, 17 years old boy, son of Ramakumar V N and Geetha Ramakumar, residing at  Vadakkepisharam, Peruvanam, Cherpu, Trichur, Kerala - 680 561.  I have been Diagnosed with Muscular Dystrophy,(Duchenne Muscular Dystrophy) when I was 3 years old. DMD is  a genetic disorder which affects the muscled in the body. It slowly progresses throughout your body and eventually affects the heart and respiratory muscles.The expected life span of the patient is mid 20s. Since my father was then working at Mumbai, the diagnosis was done in Dadar, Mumbai.

I was a normal child till the age of 8, except for having some difficulties in walking and climbing steps, which is the initial symptom for this disorder. After 8 years, gradually the disorder started spreading to my thighs and arms which restricted my movements even more. 

Since the last 6 years I am completely on wheel chair depending my parents for each and everything not only during my waking hours, but also during sleep, as I am unable to or move my arms and legs to turn on my sides.

The doctor who diagnosed me then, informed us that there is no treatment available for this disorder However, my parents have been imparting various remedial measures such as ayurvedic medicines / massage, Sidha vaidya, Ottamoolies (various conventional and non conventional treatment) since then, but without any positive results.  For this treatment Lakhs of Rupees have been spent so far and we had to dispose our properties in Mumbai and Nasik .  My father resigned his job in a public sector and went to Gulf to raise fund as well as to clear the debts caused because of the treatment.

Even before my diagnosis, research has been happening all over the world, to cure Muscular Dystrophy. The latest research suggests that a technique called 'exon-skipping' may actually cure the disease completely.

Since last couple of years I am under the observation of Dr. Vishwanath, Chennai based Neuro Physician associated with Apollo and Kanchi Kamakodi Children Trust Hospitals. Under his guidance / patronage a trust has been formed at Bangalore (Sanjay Nagar) namely Dystrophy Annihilation Research Trust (DART) consisting of parents of affected children as members. The Trust is conducting global level research to cure the disease.

DART is getting support from scientists around the world especially from US, Australia and Netherlands. To complete the research process we need a huge sum and the expected estimate for each child's treatment is approximately Rs. 70 lakhs. Furthermore, a medicine has been under development recently in US for which the US-FDA has given tentative approval. But even after successful development of this medicine at US and subsequent approval by Indian FDA to import this in the near future, we may require a huge amount.

Under the above circumstances my parents and I are left with no other option but to reach out to you for generating fund for developing medicines / treatment for DMD.
 
Since the research is the last option available for me I am sure kind people like you will assist us in generating the required fund for my mission and my survival.

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22nd November 2016
Dear Donors,
I would like to extend my heartfelt gratitude, for donating to help me fight this deadly disease called muscular dystrophy. It’s really heartwarming to know that people have me in their prayers.
We started this Milaap campaign to fund research into curing this disease. Although, we have raised around Rs.65,000 in the last two weeks, and will hopefully raise more in the coming weeks, we are way behind our target of Rs.70,00,000.  I would therefore, like to take this opportunity to urge you to circulate my Milaap link to your circle of friends and family to help me reach out to more people.  Kindly share it in social media and/or in person to as many people as possible. This simple act may fund the expense to finding a cure to muscular dystrophy and will certainly save not only my life but the life of lakhs of children having the same suffering and also millions to be born with this genetic disorder in the generations to come.
I would like to once again thank you   for taking time out of your busy schedule to spread my story to more people.
Sincerely,
Abhay Ramakumar

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Rs.191,680
raised of Rs.7,000,000 goal

40 Supporters

22 Days to go

Payment options: Online, cheque/cash pickups

Beneficiary: Abhay Ramakumar info_outline

Supporters (40)

GU
Geetha donated Rs.6,000
JU
Jayan donated Rs.5,000

get better soon

NA
Neha donated Rs.2,500

get well soon

BZ
Bhavesh donated Rs.1,000
S
Sumit donated Rs.3,000

My best wishes for this fight!

A
Anonymous donated Rs.2,500