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Help Harinarayan to undergo a Bone Marrow Transplant Surgery

“Every time he sees the doctors and nurses approaching him, Hari starts wailing. For the last three months, he has been getting multiple injections and his body is in constant pain. I look at him and tears roll out of my eyes. Only if there was something I could do about it,” Srividya, mother of 1-year-old Harinarayan said.

The happy family was struck by a thunderbolt when they got to know about Hari’s rare disease
Srividya, Anoop, and their little daughter Lakshmi were thrilled to have Hari into their lives. But their happiness was short lived. Since he turned 6 months, Harinarayan has been going through numerous tests and injections. Hari’s fever spiked up and his parents decided to take him to a hospital in Kerala.
“He was a healthy child when he was born, there were no complications at all. Hari loved playing with his sister, his giggles filled up our house. Never in my wildest dreams could I think that my Hari would be affected by something so serious, weekly visits to the doctor became the norm as every other day, he suffered from fever, cough, and cold," said Srividya.

Hari has been diagnosed with a rare form of the disease, Wiskott Aldrich Syndrome. It is a rare X-linked recessive disease characterized by eczema, low platelet count, immune deficiency, and bloody diarrhea.

Hari’s entire body itches and he can’t sleep at night at all
Little Hari is restless the entire day. He is scared of the hospital and does not want to stay without his mother. His entire body aches, he never seems to recover from a cough and cold and he weighs just 7 kgs although he is 1-year-old. Hari’s disease has stunted his growth as well; he can hardly sit up straight.
“He scratches himself throughout the day, it increases during the night and nothing can put him to sleep. We watch on helplessly as blood oozes out of his scabs.” Srividya explained.

Only urgent bone marrow transplant can save Hari
Anoop and Srividya have left their home in Kerala and are putting up at a distant relative's place. Every day is a struggle for these parents who fear losing little Hari if he does not get a bone marrow transplant within a few weeks.“Everyday Hari suffers so much and there’s nothing that we can do to ease his pain. Only an urgent bone marrow transplant can help us save our child. With the salary of an electric technician, I am not in a position to do anything for Hari and that makes me even more helpless.” said Anoop.

The doctors have suggested a chemotherapy for Hari so as to prepare his body and to prevent any rejection of the bone marrow. The medicines are all being imported from abroad and are very expensive. They are completely out of reach for Srividya and Anoop.

How you can help
1-year-old Hari has Wiskott Aldrich Syndrome, a rare disease because of which he has severe skin rashes, low immunity, high fever and bloody diarrhea. His parents have spent 1-2 lakhs already on his treatment so far and can't afford 36 lakhs. Hari has only a month to get a bone marrow transplant and it is only through your help that he can go back home, play with his sister Lakshmi and lead a healthy life.Details for direct bank transfer / UPI payments
Bank Account details: Click here
Estimation letter
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Details for direct bank transfer / UPI payments
Bank Account details: Click here
Ask for an update
13th November 2019
Dear Supporters,
Thank you all for the support.
Harinarayan is doing well. He has been admitted in daycare for BMT followup.
Regards,
Sneha
Thank you all for the support.
Harinarayan is doing well. He has been admitted in daycare for BMT followup.
Regards,
Sneha
Dear Supporters,
Thank you all for the support.
Harinarayan is doing well. He has been admitted in daycare for BMT followup.
Regards,
Sneha
Thank you all for the support.
Harinarayan is doing well. He has been admitted in daycare for BMT followup.
Regards,
Sneha
24th September 2019
Dear Supporters,
It gives me immense pleasure to inform all of you that Harinarayanan is doing very well now. He visits the hospital once every month for blood tests and other tests. Doctors have advised that he remains on medication for 2 more years. However, he is recovering very well.
We once again thank you all for your support and prayers.
Regards
Srividya (Mother)
It gives me immense pleasure to inform all of you that Harinarayanan is doing very well now. He visits the hospital once every month for blood tests and other tests. Doctors have advised that he remains on medication for 2 more years. However, he is recovering very well.
We once again thank you all for your support and prayers.
Regards
Srividya (Mother)
Dear Supporters,
It gives me immense pleasure to inform all of you that Harinarayanan is doing very well now. He visits the hospital once every month for blood tests and other tests. Doctors have advised that he remains on medication for 2 more years. However, he is recovering very well.
We once again thank you all for your support and prayers.
Regards
Srividya (Mother)
It gives me immense pleasure to inform all of you that Harinarayanan is doing very well now. He visits the hospital once every month for blood tests and other tests. Doctors have advised that he remains on medication for 2 more years. However, he is recovering very well.
We once again thank you all for your support and prayers.
Regards
Srividya (Mother)
26th September 2018
Dear Supporters,
I am humbled with the love and support given to my son Harinarayanan.
I would like to inform you that he underwent his Bone Marrow Transplant successfully. Presently he is being treated with medicines and will be in the hospital for a while. There are side effects such as loose motion an rashes. He has not been eating properly also.
Please continue to pray for his good health and share the campaign.
a heartfelt thank you to all of you for the love and support blessed on him. Will keep you posted.
Regards,
Sri Vidya
I am humbled with the love and support given to my son Harinarayanan.
I would like to inform you that he underwent his Bone Marrow Transplant successfully. Presently he is being treated with medicines and will be in the hospital for a while. There are side effects such as loose motion an rashes. He has not been eating properly also.
Please continue to pray for his good health and share the campaign.
a heartfelt thank you to all of you for the love and support blessed on him. Will keep you posted.
Regards,
Sri Vidya
Dear Supporters,
I am humbled with the love and support given to my son Harinarayanan.
I would like to inform you that he underwent his Bone Marrow Transplant successfully. Presently he is being treated with medicines and will be in the hospital for a while. There are side effects such as loose motion an rashes. He has not been eating properly also.
Please continue to pray for his good health and share the campaign.
a heartfelt thank you to all of you for the love and support blessed on him. Will keep you posted.
Regards,
Sri Vidya
I am humbled with the love and support given to my son Harinarayanan.
I would like to inform you that he underwent his Bone Marrow Transplant successfully. Presently he is being treated with medicines and will be in the hospital for a while. There are side effects such as loose motion an rashes. He has not been eating properly also.
Please continue to pray for his good health and share the campaign.
a heartfelt thank you to all of you for the love and support blessed on him. Will keep you posted.
Regards,
Sri Vidya
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