Dear friends and supporters,

It's been couple of months post BMT treatment. We are going for check up every week. Venudev continue to take his ATT drugs. He had viral infection inbetween and was on antiboitics for four days.


March 13th Dr Revathi Raj and I went to New Delhi to be part of PIDCON 2016(http://www.pidcon2016.com/) and to meet Dr Jacinta Bustamante (France) who is expert on this MSMD related research. She suggested to do another Bone Marrow Transplant with additional process as soon as possible. and we met Dr. Neena Kapoor(Director, Blood and Marrow Transplantation Program, Children’s Hospital, Los Angeles). she suggested that firstly control the TB infection and then you can do the BMT. Concidering both suggestions Dr Revathi Raj suggested us to continue the ATT trugs for couple of months and then the BMT transplant again after that.

Once again I request you, dear friends, to provide your support for us by donating small contributions to get ready for another Bone Marrow Transplant.

Thank you again.
Alaguvel.

Dear Supporter,

Apologies for the delay in sharing this update from Alaguvel.

Unfortunately the treatment is not successful. Venudev's own cells have started growing back and my cells got rejected. We discharged him from hospital on Jan 6th when his WBC counts reached more than 4000. He is stable and active we are just happy to see his smiling face again at home. 

Doctor said Gamma therapy can be other option with the current ATT drugs or another Bone Marrow Transplant with full HLA matched donor cells if available.

Venudev does not know about the major treatment he had or how bad the coming days would be, all he needs is a simple toy in his hand to smile. May the God give us the state of mind to face life at present with a smile. Wish you Happy and Healthy New year to you and your family.
 

Thank you all for your support and prayers.

Update: 

29 and 30 November: Chemotherapy
Doctor preponed the stem cell harvesting one day earlier.
2 December: stem cell harvesting from my Bone Marrow
3 December: stem cell Transfusion to my kid.

Stem cell harvesting and transfusion went well in the middle of chennai flood, at Apollo hospital they had 24/7 electicity backup and enough staffs to run the routine activities. staffs stayed at hospital for almost 4 days. there were lot of patients moved in from other hospitals. 

It's been 23 days since the transfusion we are still in hospital,
He is having loose stools and high fever which is usual after transfution, if it get worse he may be moved to ICU. We are waiting and praying his new cells to grow up from my donated stem cells. Initial twenty days WBC remained 100. last two days WBC count was 200 today again it went to 100. Dr said WBC should reach minimum 1000 to feel safe. otherwise if he get any infection it will be fatal.

From 10th December he is receiving Platelets in alternate days, whenever his hemoglobin goes down he receives red blood cells as well. 

Though he is active we are still scared until the new cells shows up.