Dear Supporters,

Thank you for the wonderful support. The Tempo Traveller alteration has incurred 2 Lakh which is paid by a loan. A new wheelchair has to be made as the old one is having some problems like mechanical design issues, and have to be made stronger to bear my weight. There were few accidents in the past when the rear wheels broke and the good thing is I didn’t fall. The cost to make the new wheelchair would be 3 Lakh.

Kindly keep supporting me. I have become little mobile using the van and wheelchair and I am working on a project which would give some fruits in 6 months I believe.

Share my fundraiser with your friends and relatives as well.

Thank You
R Arun Premsingh

Dear Supporters,

Thank you for the wonderful support.  After a lot of toils, a van and a wheelchair is being provided for me. But there are so many other individuals and children suffering from similar rare diseases who require care and support. I wish I can listen to them and extend my solidarity.

The campaign is now switching from meeting individual needs to community needs. The research foundation will eventually evolve, hence, the campaign has to run for another 4 months. Setting up a research foundation will require seed money hence the goal amount is reworked.



Of late, I have been pushing myself hard and going beyond my boundaries to set up a science-based advocacy research foundation that works to bring lifesaving treatments to children with rare diseases.

This foundation of the support group will focus on educating and activating the parents and children community to ensure they are heard by policymakers in government and by pharma industry developing the treatments. Being a developing nation, India badly needs a research centre to concentrate on the needs of people living with rare diseases. With your support, I strongly believe it is possible.

Thank you!

Thank you people for all your love and support...Every day my wheel chair helps me to explore new horizons. These days I go out all by myself along with Sasha- My Pet and have also started to explore my likings for photography
This is me...the new ME :) Some of my clicks......



Love,
Arun