Dear Supporters,

Thank you one and all for supporting us in our journey to save our daughter. We were not able to provide her with continuous medication. Her disease is progressing and started to affect her spine. The doctor suggests continuous medication for a minimum of a year to see the improvement in her bone issues. Her weak body is not allowing her to do her work by herself.
Please help us see our daughter walk again without the support and lead a normal life. Enzyme Replacement Therapy is the only option she got to survive. I and my family will always remain grateful for all the support that you have extended. You all are our only hope. We got her back from the very critical situation because of the helping hands you gave us.

Now again she is getting back to worse without medication please help our daughter who without knowing her condition trying hard to unwind herself and see the colorful world. Jump, walk, and run like any other child of her age.

Once again loads and loads of thanks to each and everyone for your support and please keep supporting us.

Thank you,
Regards,
Family.

Hello everyone, our sincere thanks to each and everyone who keeps supporting us in bringing back Shruthi much more healthy.

Me and my family will always remain grateful to one and all who never left our hands. We expect your continuous support to maintain her health.

Her bone crisis and convulsions can be stopped only by continuing the Enzyme Replacement Therapy, Calcium infusion and supporting Syrups.

You are our pillars of support without you she wouldn't have survived this long. You are the only reason behind our smile.

Seeing our daughter walk alive in front of us is a blessing given by you all thank you so much. Please keep supporting us to help our daughter lead a normal life.

Hello everyone,

First of all, I would like to thank one and all for your support for till date. It's with your helping hand we were able to cope with our daughter's health.

Now, due to low calcium levels in her body, she is undergoing a bone crisis. The day before she got her shoulder bone cracked by hitting slightly in the door. The doctor says due to her weakness it happens. We are in need of your support again to get her healthy. Only with continuous Enzyme Replacement Therapy and Calcium infusion, she can be healthy enough to survive. Please do help us to see our daughter move around happy again.

Regards,
Pavithra R.